aeilanikai

Activity

• MCTD
  

  Update

  Posted by: aeilanikai

  Last Reply: brunob 01/05/2019

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  Hello everyone,Its been a while since I've logged on. I must say, this year has been one hell of a roller coaster, for myself and all of us. I hope the holidays aren't causing any flare ups.I am very scare at the moment. 3 of my doctors are concerned I have pulminary hypertention... I just turned 22, and I was diagnosed with MCTD right after my 21st birthday. Which means if I do have hypertention then I have at most 4 years to live.. Im terrified right now. I have an appointment with the...

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 02/22/2018

  aeilanikai commented on the discussion Something that helped my Reynolds,.

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 02/20/2018

  aeilanikai commented on the discussion Extreme pain in hands and arms at night.

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 02/20/2018

  aeilanikai commented on the discussion Something that helped my Reynolds,.

• MCTD
  

  Something that helped my Reynolds,

  Posted by: aeilanikai

  Last Reply: aeilanikai 02/22/2018

  3

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  I got a massage recently, and she paid a lot of attention to my arms and hands. Naturally, my therapist helped promote the blood flow in my hands. For an hour after my inflamation was decreased tremendously,and the morning after I was able to close my hands into a fist(I am not usally able to do that) I am lucky enough to have PPO insurance that covers massages because it is considered physical therapy.I highly suggest you try this,and if you are in the LA area, and have PPO insurance contact...

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 02/20/2018

  aeilanikai commented on the discussion Extreme pain in hands and arms at night.

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 02/20/2018

  aeilanikai commented on the discussion New member-looking for natural paths.

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 02/20/2018

  aeilanikai commented on the discussion Update!.

• MCTD
  

  Update!

  Posted by: aeilanikai

  Last Reply: aeilanikai 02/20/2018

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  I am feeling a lot better since the last time I posted, at least mentally and emotionally.My syptoms havn't gotten better, but I realized that I was being a bit dramatic with my last post. I've for the most part come to terms with my condition. I have decided that I am going to use my Yoga certification to help others with this condition, and be a voice for others like us. I will be taking another extensive training in May to become more familliar with restorative yoga. I've learned that...

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 02/17/2018

  aeilanikai commented on the discussion I've never been afraid of death till now.

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 02/02/2018

  aeilanikai commented on the discussion Just want to not hurt.

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 02/02/2018

  aeilanikai commented on the discussion I've never been afraid of death till now.

• MCTD
  

  Discussion Comment

  Posted by: aeilanikai

  Posted: 01/29/2018

  aeilanikai commented on the discussion Just want to not hurt.

• MCTD
  

  I've never been afraid of death till now

  Posted by: aeilanikai

  Last Reply: aeilanikai 02/17/2018

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  Hello,My name is Aeilani(eye-law-knee), but you all can call me Lani.I am so glad I joined this group, thank you all for the support and love.I am new to this group, and have joined because I was diagnosed with MCTD last week. I got a blood clot in my leg that led to a pulminary embolism in my lung. Best part is, I got it right after my 21st birthday. Lol, happy birthday to me. The drs couldnt figure out exactly was was wrong with me till last week. I am glad we finally figured out whats going...