Hi everyone. New to this group. Its been 7 years, a trip to Mayo, and then another two yrs before the blood work gave us a name. Finally I'm not just crazy anymore. I fell down stairs in the fall, a couple of bad spells, and then Bells Palsy to end 2017. Since like I said we finally got a label, which means little (other then a bit of validation).
MCTD and Diabetes.
So Jan 1st started Keto and the Gym. Brain wise I was doing so great. The pain was not good but I was willing to fight through to accomplish my goals. Friday afternoon the pain after the gym was so bad I couldnt push. I couldn't make it home. I ended up in tears as they had to ice down both legs (I hate ice). They still have not recovered. The pain is so bad ad makes the feel disconnected from me , as crazy as that sounds. Now I think I'm tail spinning. Im waking up with dead hand, both shoulders are in flamed, so I can't lift my arms. I'm exhausted. But the legs are awful, they just burn. They burn so deep.
"People trying to help kept telling me Friday its okay you will work past it. Your body will train. Its your body changing"
I wanted to say "No , no it won't. I will pay for this"
I'm tired. Im so tired of not being in control of my own body. I just want to be the me in my head.
I turned 55 years-old today. I have been diagnosed with MCTD in July 2018. I have been prescribed hydroxychloroquine, methotrexate, prednisone, folic acid, duloxetine, etc. I have stopped taking all medication due to side effects of medication, mouth and tongue ulcers, tightening of gums in mouth, etc.I am a single mother of 4 adult children. I reside alone and work a full time job. I...
does the amount of RNP distinguish the severity of disease. I have been tested for years because I have had CRP and ESR rates get dkjcatuate but are never really high at all. ANA is always negative.my RNP came back at 27 with normal being 0-19. My dr says that at my age and with no symptoms to speak of.. I shouldn’t worry.No other tests were run and now I am noticing all these things that I...