Hi everyone. New to this group. Its been 7 years, a trip to Mayo, and then another two yrs before the blood work gave us a name. Finally I'm not just crazy anymore. I fell down stairs in the fall, a couple of bad spells, and then Bells Palsy to end 2017. Since like I said we finally got a label, which means little (other then a bit of validation).
MCTD and Diabetes.
So Jan 1st started Keto and the Gym. Brain wise I was doing so great. The pain was not good but I was willing to fight through to accomplish my goals. Friday afternoon the pain after the gym was so bad I couldnt push. I couldn't make it home. I ended up in tears as they had to ice down both legs (I hate ice). They still have not recovered. The pain is so bad ad makes the feel disconnected from me , as crazy as that sounds. Now I think I'm tail spinning. Im waking up with dead hand, both shoulders are in flamed, so I can't lift my arms. I'm exhausted. But the legs are awful, they just burn. They burn so deep.
"People trying to help kept telling me Friday its okay you will work past it. Your body will train. Its your body changing"
I wanted to say "No , no it won't. I will pay for this"
I'm tired. Im so tired of not being in control of my own body. I just want to be the me in my head.
Hi i have mctd i am so fatigued im looking at reducing my hours to 16 a week can u get any help with benifits?
Hello All! I'm new on here and have just been diagnosed almost 2 months ago with MCTD after a year of symptoms. I've had bad fatigue off and on through out the year but this past month it has been extreme faint feeling and nauseous type of fatigue. Like I cant even lift my arms I'm so tired. I don't go back to Rheumy for another month. My question is has any of you experienced fatigue like that...