MCTD Support Group

Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...

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Update!

aeilanikai
aeilanikai

I am feeling a lot better since the last time I posted, at least mentally and emotionally.



My syptoms havn't gotten better, but I realized that I was being a bit dramatic with my last post. I've for the most part come to terms with my condition. I have decided that I am going to use my Yoga certification to help others with this condition, and be a voice for others like us. I will be taking another extensive training in May to become more familliar with restorative yoga. I've learned that restoratie yoga helps me a lot, and am hoping to give this tool to others as well. 


Also, has anyone heard of nightshade produce? I was readying a bit about it, and the syptoms of eating nightshade veggies arspot on with the syptems we've been experiencing. I am going to try to cut out these nightshade eddibles and see if it helps. I'll keep you posted on how that goes as well.

Thank you so much for all the kind words, and support.
I truley appriciate this group, and I wish everyone well.

Much love,
from Aeilanikai

brunob
brunob
I'm glad you are finding some peace. I wish I could do yoga again, the scleroderma part of my mctd has done so much damage to my lungs I can't bend over or do the deep breathing needed. I've heard some about nightshade veggies, but don't know that much about it.
MToennis
MToennis
I went to an allergist and had food allergy testing. It all came out OK but he gave me a flyer on nightshade vegetables and autoimmune disease. Nightshade veggies are part of the Solanaceae family. In this family are potatoes, tomatoes, eggplant and peppers. There are other plants as well .The issue is the alkaloid in them such as nicotine, solanine, capsaicin and tropan. If you are sensative to any of these you might have reflux, nerve sensativity, joint pain or symptoms of irritable bowel.
Seems that people with autoimmune disorders tend to have more problems with this. You can find a list on line. Good luck.
Mary Ann
aeilanikai
aeilanikai
Brunob,
Im sure you can still do some of the physical practice.
Try practicing poses that don't involve you putting your heart below your head(so any inversions, including down dog) Try simple things like seated twists, and a few breathing techniques. I am so sorry to hear that your lungs are giving you a difficult time. Maybe try doing simple and subtle breathing exercises that help promote healthy oxygenated blood. Even just sitting, and paying attention to your breath in a short(or long, if you can) meditation. Message me if you'd like, and I can give you a few light exercises


MaryAnn,
I have every symptom of allergies to nightshade produce. Every single one.
So, I am going to try a nightshade free diet and see if I feel better. Hopefully I do.