My name is Aeilani(eye-law-knee), but you all can call me Lani.
I am so glad I joined this group, thank you all for the support and love.
I am new to this group, and have joined because I was diagnosed with MCTD last week. I got a blood clot in my leg that led to a pulminary embolism in my lung. Best part is, I got it right after my 21st birthday. Lol, happy birthday to me. The drs couldnt figure out exactly was was wrong with me till last week. I am glad we finally figured out whats going on with me, but now I'm terrified. I'm fucking scared. I was reading online that most people are expected to live about 10 years after they've been diagnosed, which is what braught me to this group. A lot of you said that wasn't true, and used yourselves as an example. That made me feel a lot better.. but... It didn't take mt fear away. I was never afraid of death before, and I think it was because I somewhat thought I was invisable - atleast for now, while I'm young. I've always thought that I was going to die from some sort of traggic accedent or crazy fall while hiking, or random crash.. never from a disease. So now that I've been diagnosed my depression has worsened and I honestly feel doomed.... I know I shouldn't give into this feeling, and that doing so will only make it worse, but hoenstly... I dont know how else to feel. Did you all feel this way too? I mean fuck... my dr said I can't sunbathe anymore, or go on long hikes... When I heard that i broke down... I just... I dont know.. I feel hopeless now, and I don't want to feel this way.
Thank you for letting me rant.
I feel like this group will help me a lot.
Hi i have mctd i am so fatigued im looking at reducing my hours to 16 a week can u get any help with benifits?
Hello All! I'm new on here and have just been diagnosed almost 2 months ago with MCTD after a year of symptoms. I've had bad fatigue off and on through out the year but this past month it has been extreme faint feeling and nauseous type of fatigue. Like I cant even lift my arms I'm so tired. I don't go back to Rheumy for another month. My question is has any of you experienced fatigue like that...