My name is Aeilani(eye-law-knee), but you all can call me Lani.
I am so glad I joined this group, thank you all for the support and love.
I am new to this group, and have joined because I was diagnosed with MCTD last week. I got a blood clot in my leg that led to a pulminary embolism in my lung. Best part is, I got it right after my 21st birthday. Lol, happy birthday to me. The drs couldnt figure out exactly was was wrong with me till last week. I am glad we finally figured out whats going on with me, but now I'm terrified. I'm fucking scared. I was reading online that most people are expected to live about 10 years after they've been diagnosed, which is what braught me to this group. A lot of you said that wasn't true, and used yourselves as an example. That made me feel a lot better.. but... It didn't take mt fear away. I was never afraid of death before, and I think it was because I somewhat thought I was invisable - atleast for now, while I'm young. I've always thought that I was going to die from some sort of traggic accedent or crazy fall while hiking, or random crash.. never from a disease. So now that I've been diagnosed my depression has worsened and I honestly feel doomed.... I know I shouldn't give into this feeling, and that doing so will only make it worse, but hoenstly... I dont know how else to feel. Did you all feel this way too? I mean fuck... my dr said I can't sunbathe anymore, or go on long hikes... When I heard that i broke down... I just... I dont know.. I feel hopeless now, and I don't want to feel this way.
Thank you for letting me rant.
I feel like this group will help me a lot.
Today I went to see the Family Dr and the Rheumatologist. The family Dr took 3 tubes of blood to check my blood count, a metabolic profile, TSH, and A1C. My BP was 140/98, so he was concerned and talked about upping my meds. After some errands and a meal, I went to the rheumy who was concerned that my BP was too low. It was 103/70. You see, my meds had finally kicked it! Anyway, he took my hair...
Scoring a 71 with normal being less than 20 units.71 is a moderate to strong positive, 80 is strong.Tricky test to read, will explain later.