Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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  • deleted_user

    Chest pain

    Further to my recent post i was diagnosed with PE about four weeks ago now and i am still getting chest pain which goes up my sternum and then spreads out towards my armpits. The pain normally feels like burning or aching up the middle and then sharp pains towards my armpits.Again tthe consultant said this wouldnt be the PE casuing this kind of chest pain and said it was probably just muscular. ...
  • Hi,I'm Louise, I had a massive bilateral saddle PE in back in June 2016. Since then I've had problems directly caused by and indirectly caused by my PE. I struggle to find information and find myself constantly reading the same resources over and over again. So I wondered if I could put some questions on here to see if anyone could answer them. How do people get back into training? Previously I...
  • stemufc


    hi,I'm Stephen im 38 and I've just recently been diagnosed with pe ( 3clots ) on the 19/11/16. I've now started my medication of 2x15mg a day of xarelto and I've been doing so for 5 days now and it makes feel a bit dizzy with like sinus symptoms thrown in also ? Also Yesterday and this morning I've had small blood noses that doesn't last for more than a few minutes ? Anxiety levels etc are...
  • msuspartax

    1 year post PE

    This week is the one year anniversary of my PEs.  I had a DVT from knee to ankle that shattered and flooded my lungs with PEs.  I've dealt with some pretty severe depression in the last year.  Probably not primarily because of the near death experience, but I'm sure it didn't help.  I also developed post thrombotic syndrome in my right leg, but it recently spontaneously resolved.  Now it...
  • EpicOlvera

    So mad at my insurance company

    Well, I'm 28 yrs old and was having a really heavy period that just wouldn't stop. After a month I went to see my GP and told him the situation. He put me on birth control. I was on BC for a little less than a month when I got a bad cramp in my right leg. As soon as the doctors office opened Monday morning I called them and scheduled an appointment for the next day. I limped into Dr. K's office...
  • Danii1990

    I'm not sure how to cope?

    Where do I begin? Usually at the beginning right? But where is that?A little back story. This time last year I was pregnant, atleast I thought I was, my baby had already died but I didn't know. I finally found out on the 13th November followed by a D&C on the 2nd of December. Fast forward to January and guess what I was pregnant again!!The pregnancy. Everything was going fine until 22 weeks,...
  • arat38

    PE and Pulmonary Hypertension

    Hi everyone!  I haven't been on this board in ages!  Almost two years ago I had a pulmonary embolism while I was 19 weeks pregnant.  Since then things have been pretty good (after all the initial anxiety anyway) and now I barely think about it except to take precautions in certain cases.  I do also have an anxiety disorder and a lot of times worries just pop in my head:)  Over the course of...
  • faredtsbc

    2.5 years after massive DVT/PE

    Hello everyoneHope all are doing well..Here is my profile and my concern follows it:I had a massive DVT/PE (as my doctor described it). No obvious reason after all tests have been done. I chose to do a surgery to remove the clot and the results were amazing concerning the DVT. My doctor put me on xarelto, I took it for 10 months and quit taking it myself and I did not follow up with my doctor...
  • deleted_user

    Black mold and blood clots

    Hi All, I just found some interesting info about a dangerous species of black mold causing blood clots, PE's and various lung problems. We have lots of black mold in our home - especially the lower level where I am livng post PE right now! I hear you can have the black mold tested to see if it is one of the species that causes lung problems or not. Anyone else live in a home with black...
  • Anonymous-33

    Relieve Anxiety Quickly with these links

    Hi everyone,Here are a few links I'm listening to to reduce the nightly stress of falling asleep. I found them on google I have no affiliation. I am just saying they seem to be keeping my anxiety to a tolerable level.Panic Attack Calm downhttps://www.youtube.com/watch?v=YeM2yhULSVMBody Scan Meditation (rmb recommendation thanks rmb!)https://www.youtube.com/watch?v=i7xGF8F28zoGive these a try if...
  • I was just diagnosed with my first PE on September 27, 2016.  I was at work, and out of nowhere, I experienced severe pain on the righthand flank side of my back.  It was incredibly painful to breath.  Thinking it was a muscle strain, I tried to stretch and move around some.  As the pain only got worse, a colleague thought that it was best to call 911.  When the EMT spoke with me, she said...
  • So, the biggest challenge I am having with this life changing condition is deciphering the physical sensations:  real (trip to ER), FEAR (triggered by anxiety) and residual pain, during recovery . Today I thought I was going into ER after getting no sleep from 3am to 11am. It was an  "up all night monitoring my swollen left leg and calf pain marathon"  Reminicient of my first DVT.  I told...
  • soola

    Pneumonia shots

    My oncologist said that my PEs were not a contraindication for the Pneumonia vaccine.  When I went my regular doctor and she said "no pneumonia shots until you're 65".  Now I've been told that people with  health or immune system problems are told to go ahead and get the pneumonia shots before they're 65.  Wouldn't you think that clots in your lungs would qualify us for earlier shots for...
  • Flove

    My darkest day

    Today is my darkest day. I'm 2 mo out from my DVT/PE. The Xarelto seems to be working but how do you really know.  I have all the symptoms I originally had such as shortness of breath, chest pain and calf achiness. It comes and goes.  I just started zoft today. But......I can't stop crying. I can't stop thinking about dying. I'm so afraid of my 12 year old growing up without me that I can't...
  • Anonymous-33


    Hi there support group after minor surgery 3 weeks ago. i developed and caught early enough A pulmonary embolism ( small medium size blood clots in each lung ) ..Since then my life feels like im in the twighlight zone. I was told by trusted doctors that if i experience any new sensations i should go to emergency room .. Well in the last two weeks i have had many visits to er all showing...