JT1973
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- Happy New Year!For those of you that have experienced metabolic acidosis from Diamox, what were your symptoms? I've been feeling a little winded the past couple of days, like I can't get a good deep breath in. Can't decide if it's anxiety or...
- Hi all.I haven't been on here in a very long time. Was never an avid poster, but visited from time to time. Good to "see" some of you old friends and hello to the newbies. It's been 3 years since my diagnosis and I'm doing well on Diamox, but...
- Hi all.It's been a very long time since I've been on the board. I'm sorry to see so many newbies, but glad you found this site. As, it was very helpful to me 2 1/2 years ago when I was first diagnosed.I'm doing really well, thankfully, and living...
- Is there anyone here from the metro-Atlanta area that has a recommendation for a neurologist? I have had the same one since diagnosis in 2010 and although I like him, he's moved his practice too far for me. Would be great to find someone from...
- Ok, so I'm having some anxiety and I need you guys to talk me off the ledge. Just some background, I was diagnosed 2 years ago. I am on 2000mgs of Diamox and I have responded very well to the medication. Since diagnosis, I have had two pretty big...
- I had an LP on Wednesday and it went well, no major issues. However, it's now Saturday and I still have a low pressure headache. Despite having spinal taps in the past, I've never had a low pressure HA before, so this is new to me. It's not...
- Sitting in my fancy paper gown awaiting my spinal tap and feeling scared and lonely. Thought I'd reach out to my PTC sisters and brothers for some good "juju". Ahhh...I feel it already. Much love to you all!
- I've tried to do the low-sodium thing several times and I usually only last about a week. I find it to be the hardest diet ever. I've done low-carb, low-fat, low-calorie diets before, but this is by far the hardest restrictive diet to live on for...
- I want to punch my ear in the face right now. Ok, I know that makes no sense, but this constant whooshing sound has finally driven me to the point of insanity. Seriously!Just needed to get that out. Have a good day.
- After a year of being stable on Diamox, it appears I'm having a relapse. The paps are back. Optho said it's mild, no hemmorhaging and my field vision test was normal. Nonetheless, it's back, along with the familiar ear whooshing and brain...
- Do any of you notice a particular time of year when your symptoms are worse than others? It's very strange, but for some reason, the summer is when I have my flare-ups. I was diagnosed in June of 2010. Diamox brought me under control with very...
- My symptoms have been really well managed for the last year. I will get a headache or pressure or just "feel off" here and there, but it usually doesn't last very long and then I'm feeling pretty good again.I have had a Mirena IUD for 5 years. I...
- On and off since I started taking Diamox (almost two years ago) I've experienced some shortness of breath. It's not constant, but I'll have episodes of it and it comes and goes. I also get a heavy feeling in my chest and it just feels like I can't...
- At this very moment in time - I do not have a headache, my ears are not whooshing, my neck is not stiff and I can see perfectly.It won't be long before the pressure builds back up and I forget this feeling. But, for this very moment in time, I will...
- The other night we were sitting at the dinner table and I was talking to my kids about school. My husband and I were talking about how we had to take typing and that it was on an actual typewriter, which of course, I don't think any of my children...