Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
My second LP was the one that gave me the low pressure headache much like you described. I think mine lasted 4 or 5 days but they never told me how long to wait. Mine was the same as yours not so bad I couldn't handle it but definitely not something I wanted to endure! I hope it stops soon for you!
Danielle
I would stay on the diamox unless your neuro tells you to do so, weening off of diamox can be tricky and should be done slowly. I second you calling your neuro. It is a pain to have a low pressure headache. I am sorry you got stuck with one. :( if it were really bad I would say go t the ER, but you may need towait it out until next Wednesday before getting it patched. It may just take that long to heal itself back up.
My advice is to just keep doing what you are doing. Lie down as long as you possible can and drink caffeine.
Hugs to you JT!
Mal
I'd ask your doctor that monitors our PTC about the diamox
Sorry you have one dear. No fun at all! I hope you heal up soon :(
Amy
The nurse was an idiot. She tried to do an IV in my hand and pretty much botched it and blew out the vein. Then, she finally got it in my other arm but had to draw blood first and got blood everywhere. All over the sheets. There were drops on the floor and on the wall. It looked like a crime scene!
After being there for four hours they told me the anesthesiologist would be a few more hours since they were backed up and under staffed. So, we decided to leave and have the blood patch done tomorrow as an out patient procedure. It's scheduled for the morning. I'm so frustrated and I just want to start feeling better. I hope I will at least get to enjoy a little bit of time before my pressure builds up again! Oh, and the doctor said stop the Diamox until after the patch.