JT1973
Status:
Mood:
Ok
Offline
- If you are trying to manage your sodium intake or if you are just dieting in general, and have a smart phone I found a great APP called Sodium 1. You can put your goals in there as far as sodium intake and will track your progress throughout the...
- So, after a year of doing well and being stable, I've had a little setback. As I posted a couple of weeks ago, I started having more frequent and more severe headaches. Since my HAs are usually infrequent and mild, the doctor assumed that my...
- Went to my neurologist today because I've had a change in the severity and frequency of my headaches. He thinks my pressure is up and is increasing me to 1500mg of Diamox from 1000mg. He is also sending me for a CT scan to rule out a subdural...
- As I mentioned in another post, my headaches are rare and mild. However, I am going on a week now with a headache and ibuprofen isn't doing the trick. I feel like someone has dropped a brick on the top of my head. I know that this is...
- I have somewhat of a mild case of PTC in comparison to many of you. My headaches are mild and usually go away with tylenol or ibuprofen. I'd say I have a headache and have to take something maybe once or twice a week. Lately, when I do get a...
- A few weeks back I posted about how I was concerned about the amount of hair I was losing. Many of you said you were going through the same thing. I saw my neuro on Friday and he said that hairloss is a side effect that many of his patients taking...
- I know others have brought this up, but I'm really starting to freak out about how much hair I'm losing. When I take a shower and run my fingers through it, clumps come out. And not only is it falling out, but the texture of it has actually...
- I read the post the other day regarding Nasonex...interesting. But, I have a question. Has anyone had their whooshing go away completely from Diamox alone? Aside from an occasional minor headache or neck ache, the whooshing is really the only...
- So, I had an LP yesterday. It's the first I've had since my diagnosis 8 months ago. Pressure is still elevated. OP was 25 and he took me down to 17. But, it's a lot lower than my first one which was 38. Paps are gone, no headaches, but I still...
- I have been having some problems with my eyes the past couple of days and I'm terrified that my paps are coming back. But, I'm also wondering if maybe they are just irritated and I'm being paranoid. It started a few days ago when my right eye felt...
- I'm freaking out. I am currently on 1000mg of Diamox. I take 500mg in the morning and 500 at night. I took my regular dosage this morning about 8am. Then, a couple of minutes ago (4 hrs later) I took another one. It was totally a mistake. I...
- I hesitate to ask about this because it seems like it could in no way be related to PTC or the Diamox, but here goes. Around the same time I started taking Diamox, I started to notice some strange things with my breathing. It's really hard to...
- First off, thanks to all of you for your support on my other post "Depressed/Scared". One of the things I'm learning about this disease is that it really has no rhyme or reason and that sometimes flare ups just happen. It's frustrating, but I know...
- I have been doing really well over the past couple of months. I was diagnosed in June and started on Diamox. The first couple of months were hell between the IIH symptoms, the side effects from the meds, and my depression and anxiety over being...
- Has anyone tried to do a reduced sodium diet and if so, have you noticed any improvement in your symptoms? Was thinking about giving this a try, but it's sooooooo hard!!!