Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hi all.
I haven't been on here in a very long time. Was never an avid poster, but visited from time to time. Good to "see" some of you old friends and hello to the newbies. It's been 3 years since my diagnosis and I'm doing well on Diamox, but wish I could say I was in remission (don't we all).
Anyway, something freaked me out yesterday. I went to the state fair and rode a ride with my kids. It wasn't anything too crazy, but it was a spinning ride and I haven't been on one in years, definitely not since diagnosis. Well, when the ride stopped I was dizzier than I have ever been in my whole life. I couldn't see, everything was blurry and all the sounds around me were muffled. I was embarrassed, but I had to call for my husband to help me down because I couldn't even stand up. I sat down and after a few minutes I started to feel better. However, I haven't been 100% since. My equilibrium is off and I feel strange. Plus, I got telltale pressure symptoms soon after - whooshing ears, headache, neck pain. Do you think I jacked myself up on that ride?
I'm kind of nervous now.
I haven't been on here in a very long time. Was never an avid poster, but visited from time to time. Good to "see" some of you old friends and hello to the newbies. It's been 3 years since my diagnosis and I'm doing well on Diamox, but wish I could say I was in remission (don't we all).
Anyway, something freaked me out yesterday. I went to the state fair and rode a ride with my kids. It wasn't anything too crazy, but it was a spinning ride and I haven't been on one in years, definitely not since diagnosis. Well, when the ride stopped I was dizzier than I have ever been in my whole life. I couldn't see, everything was blurry and all the sounds around me were muffled. I was embarrassed, but I had to call for my husband to help me down because I couldn't even stand up. I sat down and after a few minutes I started to feel better. However, I haven't been 100% since. My equilibrium is off and I feel strange. Plus, I got telltale pressure symptoms soon after - whooshing ears, headache, neck pain. Do you think I jacked myself up on that ride?
I'm kind of nervous now.
"Don't poke the bear."
I think all of us struggle with the balance between not awakening or aggravating our IH and leading as normal a life as we can. Your symptoms so clearly appeared after the ride I have to believe the ride caused them.
There are a couple of choices:
1) Do nothing, be very careful of yourself for a few weeks and see what happens.
2) Go into the doctor and get back on the meds ASAP to see if you can nip it in the bud.
Which choice sounds like the best choice for you?
I don't have a shunt. I'm on Diamox - 2500mg/day. Hopefully I'll just feel woozy for a little while and then it'll work itself out. Ugh. I'll give it a few days and then call my neuro if it hasn't gone away.
This disease is so stupid. Just one more thing I have to cross off my list from here on out - no rides I guess. It's not that I care so much about riding them, but it takes away one more fun and special thing that I can do with my kids. Waahh!