Hi all! I am fairly new here and have been mostly a reader. Thank you all for sharing. I too had a fear of not fitting in, cp has pretty much made me isolate myself because it seems that people do not understand my cp or think I am faking it. I was diagnosed with fibro about 10 years ago, major depressive disorder about 12 years and diabetes about 3 years. Then there is arthritis which it seems I have had forever. It just seems less stressful to keep to myself as much as I can. There are days when I can't even try to act normal because I hurt too much to function or the fibro fog makes me too goofy to drive or communicate with others. This illness is so hard to try to explain to someone who has not experienced cp. I am thankful for finding this group. God Bless you all with a good day. ~~ Kat ~~

I want to let all of the fairly new people know that my door is open if you ever want to talk, message me. You can come back every day on just this thread if you want to, and share a little bit. I'm glad all ya'll are here and I hope you all have a great day.
David.

Hello dear cpers... I'm running a little behind so I've got a few people to comment on.

Sunny so glad that you were having a good day... sending gentle hugs and positive energy for you... and hoping that it's the first in a long string of good days. Thankyou for posting the links about how to type special characters... I can't wait to do some experimenting with them, to see if I can figure out how to make those wonderful hugs. xxx

PinkyBruno your post put a big smile on my face. The words you have spoken here express the very essence of DS... and particularly what this post is trying to achieve. If we all aim to hold out our hand to help up a fellow cper who has fallen, then we shall all have our lives enriched. Sending hugs and smiles your way... and wishes for a minimal pain day.

Hathani so glad you got a blue sky and sunshine day... I hope it made you feel bursting with joy. We are still dealing with rain and more rain up here... but the sun did peek out from behind the clouds for a few minutes late this afternoon which made me feel so much better!

Serenity my dear friend... I can't tell you how pleased I am to see you here on this thread. I know all about the problem with the patch of course, but I'm glad that you came here looking for the support you needed. Please keep coming back... I promise you if you do you'll find a whole lot of support.

Hello Emeraldsea, glad to see you here and to hear (from your status) that you are coping with your pain. That in itself is surely worthy of celebration... so I will join you in a yahoo! Please keep coming back and letting us know how you are.

Hello sheltoesmom, glad to meet you... and I just love your sunset! It's good to hear that you manage to remain positive despite having been suffering from pain for such a very long time. Keep on celebrating the good days... and please keep coming back here, I know you'll be a big asset to the group.

Hello Kristi... sorry to hear your pain is intense, but so glad you found your way to us. Please keep on posting on this post... and reaching out for support whenever you are in need. There are so many extra special caring people in this group who are ready and waiting to help a fellow cper who is struggling. Sending gentle hugs and healing energy your way... and wishes that your pain settles as soon as possible. xxx

Cindy (curious72) you are a long way from being alone as we are all in the same boat... and members here really want to reach out and embrace anyone who is in need of some support and comfort. However we can't support you if we don't know you are out there... so please keep coming back to this post and saying a little bit about yourself and how you are managing. You are so right that cp can steal a lot from our lives, but in the end it can't steal our hope or our positive energy unless we choose to give them up. Stay happy girl, and come here and share it about.

Hello jokat1 and welcome... it's so good to see you taking the step to move from being a reader to a poster. It sounds like you have a lot going on with your health, which is all the more reason to keep coming here and telling us about it... because then we can reach out to you with support and walk beside you on your journey. Most of us would have experienced the phenomenon of other people not understanding our pain and the limitations that it can place on us. We know how it feels and we are all in the same boat here... so you might as well climb aboard and have some support and company along the way.

I really, really hope all the newbies, and the new posters, will keep coming back and posting a little bit more about yourselves and how you are coping (or not whichever is the case). We are here to support you... and all of you are just as welcome and just as important to the group as any member even if they've been here since the day 1 of DS. Let us know who you are and that you are out there people... because until you do how can we welcome you into the group!

I'm sending out lots of gentle comforting hugs and warm smiles for all of us who live with pain. Take care... Gaye... xxx

I am in a great deal of pain and the sciatica has returned, I had a porphyria attack the day before yesterday into yesterday. But it is NOT getting me down. I have just spent a very entertaining two hours, my brother came to see us and his best friend came to see him, between them they have had me rolling with laughing. I am beginning to realise that I haven't lived :) (joke). It is an old saying that "laughter is the best medicine", and by golly it is, I don't care about the pain or the nasty symptoms of porphyria, I have still got my sense of humour and I thank God for it. Earlier, another friend came to see us, we are so blessed. I hope that others are having an enjoyable day, despite the pain. Blessings, Mary

Mary,
I saw the picture of your Grandson. You must be proud of him. You have been a Blessing to this group and I want to thank you for that. I hope you get to feeling better, and come back and tell us.

We can keep this thread going for as long as we're allowed. I don't think there's a limit. Thanks again to all who are, and keep on, participating in this truly supportive venture.

David.

Good Morning !!!! Let's try to kick this thing over 200 today.

For some reason I keep thinking today is Thursday. It's Wednesday. I know it's not because of Memorial Day............
))))) I had to work (((((.

Today I started off the same way I usually do, with gratitude. I am grateful for all the wonderful people, places, and things, that I have been Blessed with. Then I am a Spiritual person.....most of the time....until I want to drive. As long as I remember that I'm still driving with a learner's permit, I'll be OK.

David.

Good afteroon, from the UK,

A beautiful day today, all the Spring flowers are out, it is good to be alive.

Blessings to all of you,

Mary

Hugs to all. We each have our own pain levels, our lack of sleep, our struggles in life. Today I am wishing an easier day for my friends. A chance to see bright colors of green grass and blue skies A little extra sleep, someone to hold your hand and so much more. I love you all and I wish the best for each one of you.

Good morning everyone . Hope sly of you have rised and shined. It's a beautiful day here. Im sitting on the deck reading up on my DS friends and saying some prayers along with reading.I pray that everyone has a better day then yesterday. Hugs to all

I agree with David that it would be really good to hit the 200 mark today... though actually for me today is over already. It's after midnight and I'm heading up to bed now... but when I log back in on my tomorrow I hope this post will be past the 200 mark.

It's so nice to come here and see the positive messages that people have left. However that doesn't mean that if you are struggling or suffering or feeling lonely or just plain old downhearted, that you can't come to this topic and post about what is going on for you.

We just want to hear from everyone on this post... and just as often as you can. I reckon there's still some more "readers not posters" out in DS land who could jump in here and say hello and let us know a little bit about where they are at right not and what's happening with them

So come on and jump right in... I promise the water's warm and there are no sharks to bite you, so you'll be totally safe.

Well have a great day peoples... wishing you all a day of minimal pain and lots of reasons to make you smile.
Take care... Gaye... xxx

I am NOT ok! My daughters on meth and she has her 5 yr. old son living in that mess,she has a guy staying with her/son who is a well known meth dealer/user. My grandson told me over ph.,"mommies dead." I m quite sure this is what that guy told my grandson while my daughter was sleeping. I'm sick,tired and totally fed up, my little grandson has NOBODY to turn to. I'm 2000 miles away. Please pray for my grandbabys protection. This is killing me, this is how i'm doing/feeling. nrthngl4ever

Vicky,
I am sending you a message.
David.

I got a call this afternoon from the spine specialist's office and I have a meeting with the surgeon on June 9th to discuss the spinal cord stimulator permanent implant.

The SCS trial decreased my pain by more than 50% at times, and also decreased the need for all of the meds I was taking.

Hopefully it will all work out. It's almost scary because it's finally looking like it's going to happen.

Can I get a YAHOO!!!!!

David.

@Davida, this is awesome news! I'm so happy for you. Hugs

Giant Hugs to everyone who is hurting. David That is WONDERFUL news. YAHOO indeed! Hugs, Barbara