I am off to get ready for work. Everyonehave a great day. I'll be back tonight.
David.

Hello everyone. It was a 3 day weekend here and I have been at my son's, to care for the cat while he was away. I'm really pleased to see how many people have posted here on this topic, over the 3 days of my absence. Of course I'm not pleased that people have been suffering so much pain... whether that has been caused by your bodies or by your relationships with friends or family.

But being able to come here and reach out to others who care, and who understand the type of suffering we all deal with, helps to give us extra strength to keep fighting to gain the better quality of life that we all deserve... and to not give up on trying to find new and better ways to cope with our situations.

Welcome to those people who have posted for the first time while I was away. Keep on coming back and letting us know how you are getting on. The more you post, both on this topic and on the board itself, and the more you tell us about yourself and your circumstances, the more support you will receive.

If you are feeling lonely or misunderstood or cut off from the world because of your pain, then try to send out hugs to other members who seem to be in need of some extra ones. The more support that you give here, the more you will receive back.

"Alone we can do so little; together we can do so much." ~ Helen Keller.

Sending gentle hugs and warm smiles for everyone.
Take care... Gaye... xxx

Hi gents and ladies,
I don't post much because I am pretty much bedridden and trying to raise a 7-year-old and clean up after four cats. In the wheelchair, it can take all my time and leave me exhausted afterward.

But, I saw the great posts and decided to post today...

David, you are great! I hope the permanent implant works for you.

For those of you who have supportive families, please do not take them for granted. I have my daughter and my 87-year-old dear grandmother. I have other families but those two are the only supportive ones. My sister and two brothers don't call and never stop by. My father and mother live beside me and my father never stops by. My mother does but only to chastise me for "not doing anything". See, I have Ehlers-Danlos syndrome and my lower extremity joints are literally falling apart. I try as much as I can and most days I do get the litter boxes scooped, I run over the floors with a dust mop, and I cook for my daughter. All I would ever want her to do is to maybe unload the dishwasher (really hard task because I have to stand and sit and stand and sit to put the dishes away) so I could load it as a dish is dirtied. Or, maybe she could spend some time with my daughter so I could catch a nap on the days when sleep eluded me the night before. I love her because she is my mom. But I think that hurts the most because I don't feel love from her anymore. It's like, since I got sick, I'm not worth her love because I can't take care of her when she gets older.

To make matters worse, they found spots on my brain in an MRI that could be either demyelination (as is seen in MS) or leaky blood vessels. No one but myself and my doctor know about these because I didn't want to worry anyone. But I wonder if I will be here for my daughter. My type of EDS is usually not fatal, just debilitating.

Oh, boy, I did NOT mean to go on like this...anyway, I hope you all have a great day and I will say a prayer before I (hopefully) finally go to sleep this morning.

To Angie, iam glad that you posted. I know what it is like to have a mother like that. Mine lives in the same town and i have not seen her in about 8 yrs. Now i do not want to ever see her again. These kind of people are the last thing that a person who is ill or in pain needs. I've lost friends because of my medical problems. Anyway i hope you feel better and post more often. Big Hug

WOW! Close to 400 now!

Really bad day!!!

BOss is out of town - all last week, two more days this week. I am all alone in the office. There is not much to do but I have to hold down the fort in case someone comes in.

How I hate the pain that took away my real work. It was always interesting and something new everyday. Now they alll want me until I go for the physical. Seems every employer thinks drug-free means no physican prescribed meds either.

I am so very depressed.
Thanks David, for a place to share.

Not really present in this world. Not giving into the drugs. Ache all over. Got into work late which NEVER happens. Feeling defeated. Asked boyfriend of 10 years to leave yesterday. Just so numb.

Decent day, pain is still well controlled over all, but I slept funny and my hip has been giving me some problems today, so I won't push it tomorrow.

I have plans with my boyfriend tomorrow, then I'm going to spend the rest of my week putting some serious work in on my dissertation, which I've been very lazy about the last few weeks. As much as I keep wishing, the darn thing won't write itself.

Hey all ya'll,
Gaye, glad to have you back. I figured you were not near a computer because you are so supportive.

It is so pleasing to have a thread to come to to let each other know what's going on. I'm tired and sore. I started a job in a different building last week, where I actually have to work. Of course I'm overdoing it, but I'm kinda pigheaded. I love to work, but I know I'll pay.

Angi, Sunny, Regina, Enigma, Sarge.............Thank you.
You don't know how good it makes me feel and how much I appreciate all ya'lls kindness and openness. It is so therapeutic toward our dealing with CP.

((((((((((((Big Bear Hugs to all of you.)))))))))))))

Please.........Let's keep this going. Let's see some new posts.

David.

I am so grateful for this post it helps to tell some one how u feel without being judge another bad day and on type of it i have pu a virus must have been when the gc came to visit since i rarwly leave the house except for dr appt & grocery shopping I am quesy tired of vomiting at least let me get some relief from the virus

@Kallie, that just breaks my heart. I'm so sorry. We all need are dads in our lives. I pray he will come to his senses and come back to you. Keeping you in my thoughts and prayers. Hugs

this is a great thread. i'm really sorry for those of you who do not have family support. it's a loss in the lives and yours. my family isn't close to me geographically, but they support me in words. i don't think they really understand, but they've stopped asking me when i'll get over and such. i rarely mention it b/c it's always there, so i think they can no worries themselves with it.some people just never will believe. keep hanging in there everyone. there's love and hugs here. thank heavens for people who understand. kudos for all you do and for keeping us all encouraged to keep trying.

Denise, I hope you feel better soon.

I agree. This is a great place to come and get support. We have family and friends that really just "don't know" what we are going through. When we come here and we share a little bit with each other, we release that ball and chain we carry around in our heads. Does it give us physical relief? No, but we let others in a bit, and this is how we can continue to support each other.

I am going to get ready for work. I slept pretty good. I always wake up tired. I just had my second cup of coffee, and I'm starting to come around. I'll be back tonight.

Keep the replies coming. Share a little bit about yourself. It may not only help you, it might help us.

David.

Time to vent. Here it is 8:30 in the morning And time at level six With plenty to do on my plate. I have some family members coming over for lunch And I will have to visit While laying on the couch.

Fears: What if the pain gets worse? How far into these narcotics Do I want to go? Well that's enough. I have to Start the day. Love to all my friends
Hank

Hank, You are brave for soldiering on with people coming over. I pray strength for your day and by some miracle a lessening of pain.