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- I forgot to ask in my last post if anyone else gets palpitations while taking Carbamazepine. I have had the Holter monitor and apparently my heart rate varies and the doctor said it skips a beat. I don't seem to notice it when I am off the drug.
- I have had TN for about 10 years with remissions of various lengths. I had just gone off meds. A month later I had a canker sore on the tongue and the shocks started again once that was healed.I have read quite a bit on TN but have not seen where...
- I have been back on medication for TN for over a month now. I had to increase the dosage to one I had never had before, however that has done little to stop the shocks especially on eating and sometimes talking. I started having to chew only on the...
- Does anyone else experience long periods without attacks and then they suddenly re-appear? I wish I had some idea as to the triggers if there are any but my episodes have always started in the early months of the year, mostly around March. I now go...
- My husband has been in a nursing home almost 4 years now and for some reason I'm having more difficulty than ever coping with this season.No doubt my recent move has something to do with it as is having almost no family. I don't feel like accepting...
- We are now in our 13th year since diagnosis and 3 years since my husband had to be placed. In recent months there has been decline and it appears to me that he is giving up on life. He often refuses to eat now or take any liquids. He did have a...
- We are now in our 12th year since diagnosis and 3 years since my husband had to be admitted to long term care. He is in the later stages of Alzheimer's, in a wheel chair, has no speech and I'm not sure he recognizes me although I go in 3 times a day...
- I had a total knee replacement a year ago. I still get pain and stiffness in the knee and it feels warm to the touch. Has anyone experienced this?I'm seeing the surgeon next week, the first time in many months and will have x-rays. I hope there is...
- I have written on this subject on another thread but since that one related to the opposite problem I thought I would update here.As I mentioned before my husband has a history of constipation, much worse now that he is totally wheel chair bound and...
- Today my husband's nursing home is putting on a Halloween party for the residents and the place is all decorated.Last year I was able to take him to the party and thankfully he was able to enjoy himself. This year it's a different story. When he is...
- I have not been back on this site for many months and I look forward to catching up with people I may still know. My husband seems to have reached the infancy stage in this devastating desease. He screams and cries before meals, eats well, then...
- I was hoping that I would be dealing better by now with my husband's placement in a nursing home but it seems to be getting worse. I am so depressed and so guilty that I can't give him a better quality of life.Other wives in his unit seem to coping...
- Since a fall in March of this year my knee has been giving out. I have been advised I need a replacement but how can I have that done when I'm the only one watching over my husband's care in the nursing home? Pushing him in the very heavy wheel...
- I have not had an attack for at least a year so decided to reduce the carbamazapine to 200mg a day. My doctor said if I have no symptoms for 3 months I can try going off meds altogether.The only thing I have noticed is a slight numbness on the left...
- Hi everyone. I haven't posted for a while. I am so immeshed in what goes on in the nursing home and have really been trying hard to change things for the better there. By going in three times a day I see so much that is distressing and the only way...