JazzyO
Status:
Mood:
Ok
Offline
- Hi,I had a VP shunt put in about 5 months ago. Prior to that I had a LP shunt but then had 6 surgeries in 8 months for CSF leaks, so during that time I had low pressure headaches.Even though my papilla edema is down I still have daily debilitating...
- Hi Everyone,My allergies are so bad that they make my IH symptoms so much worse. I was trying to look up if it was OK to take OTC allergy meds like Claritin D but it was confusing as what I found. I also found from a search done here that someone...
- I was wondering if any of you have had the daily dizziness, nausea, and vomiting with your high pressure. I've been having it daily and am getting so tired of dealing with it!Years ago I would get nauseous at the day went on and then would throw up...
- Hi everyone,It has been over 1 week since my VP shunt was placed (I had a great, working, LP shunt for 2 years then had 6 surgeries in 8 months (in 2011-2012) for CSF leaks and my shunt was discontinued and I went into remission until I was re-dx...
- Does anyone know if Diamox is better than Topamax at reducing CSF pressure or vice versa? Thank you.
- Hi All,I am having a VP shunt placed Monday. In the past my ventricles were too small but now they are large enough for the shunt. I have had multiple LP revisions and now my LP shunt is disconnected from multiple CSF leaks.I was wondering if anyone...
- Hello, I haven't been on here for awhile. I was in my third remission of IH. But then 2 years ago I had a LP shunt revision and then 6 surgeries for CSF leaks in my spine and my LP shunt was disconnected and I went into remission, but now my IH has...
- Has anyone had a blood patch done for an LP leak? I am going to get one and was wondering what the procedure was like. Am I awake? Do I need to fast before the test? Is it outpatient? Thank you very much, Blessings, Jazzy
- Hi, I was wondering if anyone has ever had the tx. for a CSF leak via a caffine IV drip. If so, I was wondering what is was like? (I've had mulitple leaks fixed via surgery.) Thank you!
- Hi, another small leak formed so my Dr. was asking me if I was drinking caffiene. This has not helped me in the past. but then I thought maybe there is a certain amount you are supposed to drink? Has anyone had success with caffiene and how much...
- Hi everyone. Back at home over a week from my last shunt revision where they found a major leak where my old shunt was. Was in the hospital for 4 days as they did tests to try and see where the leak was. It was hard but I kept praying and...
- Hi Everyone, I found out there was a leak in my dura where the shunt tubing was. I take immunosuppressents for a kidney transplant and found out that my meds cause the dura to weaken, so my NS put a whole new LP shunt in. At first he had the...
- Hi, just had my shunt tested, it seems like there is a leak or a disconnection of the tubing from my shunt valve, so that is why, even though my NS just tied of my shunt, I'm still having low pressure headaches/nausea/vomiting.Am scheduled next week...
- Hi Everyone,Wed. I have a shunt test since even though my shunt was tied almost 2 weeks ago, I'm still having over shunting symptoms.I was wondering if anyone has had a shunt test before? I know I will have a spinal tap and then the dye. After all...
- Hello all,I had surgery 3 days ago and had my LP shunt tied off from my overshunting (this was something my NS and I discussed and agreed to try first, and if that didn't work, like if my IH came back, then I would go for the whole new shunt system)...