JazzyO
Status:
Mood:
Ok
Offline
- Saw my NS today and he took out my staples (didn't hurt at all, just itched).My temp was better today but he didn't know why I was having one since I had no signs of a shunt infection..he even palpated around my insisional sites and it didn't hurt...
- Well I still have been having a fever between 99.5 and 100 degrees but I had blood work and my urnie tested and all was okay, which is great, but I'm freaked out by still having a fever. I don't have any redness or warmth around my shunt incision...
- Hi all, sorry I haven't checked in sooner, not feeling so great. Had my programmable LP shunt placed on Monday, still pretty swollen around the stomach incision but it is gradually going down, I'm going to have to go to the Dr's Monday since I've...
- Well the big day is Monday at 11:55 for all my old LP shunts being removed and a programmable LP shunt going in.I really pray that this is my last surgery for this crappy disease and I can function again. I can't thank you all enough for giving me...
- I know many of you know Charlotte. She is going through a very hard time right now and I thought it would help her if we could let her know how much we care.. remember Charlotte we are all here for you, no matter what is going on! Blessings, Jazzy
- Well saw my NS again.the plan is to take out my old shunt(s) system including the resevoir since it is hitting my spinal nerve..he showed me the MRI and there are at least 6 coils of tubing in my spine. Then he will put in a programmable LP...
- Just wanted to let you all know that I'm not ignorning any of your topics just my depression has gotten worse so hopefully I'll feel good enough to tell you what my NS says on Friday and offer support to all of you. Jazzy
- Hi all,Finaly saw my new NS. He is very laid back, my hubby told me he is a surfer and the x-ray tech said he is def. a "dude"He gave me the most thourough neuro test I have ever had. I liked that he focused on me and not my husband (my husband...
- Had my MRI and it showed that one of the many loops from my LP shunt appears to be pressing against one of my spinal nerves and that's what's causing the constant sciatica..I don't know if it could cause my constant low back pain.My hubby thinks...
- Hi all,I had replied to someone's post about something a surgeon told my husband (my hubby is an OR nurse). This surgeon said that people should not con't diamox if they have the fenestration/decompression surgery since diamox lowers the pressure...
- Hi all,finally saw my new neuro Dr. today (who actually remembered me from when she took care of me in the hospital!). She is really nice and empathetic, but felt bad she couldn't help me anymore since the problem is over shunting.She said that if I...
- well that was interesting, but a waste of time.I am waiting to here from my new NS's office to make an appointment since he just got back into town.Anyway, I decided I would go see my currect NS one more time to ask for physcial therapy since my...
- Hi all,I think this was a topic before, but I can't remember (no pun intended).When I was on diamox my short term memory was horrible.Now that I'm off diamox I'm finding it not getting much better.....I have word finding problems, my short term...
- After my second LP shunt it would take about 4-5 hours before the low pressure severe headaches kicked in and I had to lie down.Now it happens in 3 hours and if I don't lay/lie (I can never tell which is the right word to use) down and push it to 4...
- Hi all,After my first LP shunt revision, I had sepsis, plus 6 IV's in two days since my veins kept blowing out...anyway, I've never been so sick as that time. At one point the nurses were going to put ice packs under my arms (I had one on my head)...