JazzyO
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- Hello all,Well I'm still overshunting. I'm waiting for another test, after my antibiotic course, to see if the infection is clear to get a new shunt valve and tubing.I'm 5'9" and weighed 160 when my IH came back. Even though my Dr. said he knew I...
- Hello all,I am sitting here crying because I was reading about all the people who rec. VP shunts over LP shunts. I was not a candidate for a VP shunt. I had two of the top NS's in Cal look at my MRI and told me there was no way they would even try...
- Sorry for the gross topic but I've been throwing up daily since I was re dx. with my high pressure. Before I never had this issue. I know with low pressure headaches it is more common, was wondering if any one with high pressure headaches had/has...
- Hello,I've had an LP shunt for over two years, just started to have migraines and went to my NO who said papilla edema back. Have a programmable shunt so got it lowered one number and went into over shunting so had to go back to orginal number my...
- Hi all,went and saw my NO for my follow up since after my programmable LP shunt I was still having right eye papilla edema. Well the good news is that the edema is down and peripheral vision is improved. He told me that there is chronic long term...
- Hi, someone wrote a post earlier about having their anxiety go away once the pressure went down in their bain and thought that maybe the pressure was affecting a nerve that had initially caused her anxiety. I wrote the IHRfoundation and asked them...
- Hi all, I went and saw a P.T. for some neck pain that I had when I woke up from my last shunt surgery. I couldn't believe that the P.T. knew what IH was (though she called it ICH) and also knew that increased pressure causes neck and back pain! I...
- Hi, I was wondering if high pressure can cause fatigue (I'm not on any meds for PTC). I noticed that when my shunt was adjusted and my pressure went higher I was so tired all the time. My NO wanted to make sure my shunt was working so instead of...
- Well, went to my NO today and I have papilla edema around my right optic nerve. About 20x's a day my vision goes cloudy in that eye but resolves in about 10 sec's. NO worried that one day cloudiness won't clear and will be blind in that eye.He...
- Hi everyone, hope you are all doing well.I went and had my last adjustment of my shunt...thank God I don't have to have surgery anymore to adjust the flow. But the next day I had a high pressure headache (I had almost, almost being the operative...
- Hi all,After my last surgery where my progammable LP shunt was placed, I know have orthostatic hypertension. Everytime I get up my vision fades for a couple of seconds. I've tested myself at home and my B/P drops. At first I thought it was...
- Hi, most of you know Karen (karelstx).She thinks she is complaining if she posts about what she is going through so I'm asking for your positive thoughts for her.She is having a lot of weird symptoms which greatly concern me and hopefully she will...
- Hi all,After my programmable LP shunt surgery I woke up in my hospital room with sharp stabbing intermittent pains in my left lower abd. quadrant and also in my left shoulder area (more the scapula area). I thought maybe it was gas from the...
- I am now up to 6 hours a day with no low pressure headaches. It has been since January that I have been able to stay up this long! Today I walked 7 blocks up to the hospital and then the 7 blocks back, I almost cryed, I am so happy to finally be on...
- well things have been going better since my LP shunt (programmable) and I see my NS to get it adjusted again on Friday.Here is my problem, I keep thinking that something will happen or that the adjustment won't work. I hate that I think like that...