Yes. I'm sick to my stomach constantly, to varying degrees. When it's mild I eat. When it's really bad I take Zofran. Yes also to the rocking boat. I think my neighbors think I'm an alcoholic. I take the garbage out and weave across the driveway. I don't vomit, though. I wish I could. Sometimes it feels like if I did, I'd feel better. When the nausea gets beyond bad, and the Zofran doesn't help, it progresses to a feeling like a giant rock in my stomach and nausea in my chest and throat. Ugh. I don't even like typing it.

I've found a few foods that settle on my stomach better than others in the mornings and I stick to that. Most notably, a banana smoothie made with frozen banana pieces, coconut milk, and some protein & flax powder. Everybody's gentle foods are different. If you find some stock up or pre-cook and put it in the freezer so you don't have to actually fix something when you don't feel good.

Hi Jazzy,

Yes, I had that as well. I was never sure what to associate it with though, high pressure, medications, severe stress, etc. For a while that was my worst symptom, I could deal with the pain, but nausea and vomiting made me absolutely miserable. I ended up seeing a GI doctor who thought it was due to stomach irritation from Diamox. I lowered the dose, which helped a little initially. I used marijuana during the worst stages of the nausea, but what helped me most I think was trying to eat very small, but frequent meals. My husband made all my little snacks and put them in the fridge, so I could just grab them instead of being sick and exhausted trying to make it for myself. When it was really bad, I would slowly sip on hot tea with lemon or raw honey and that always seemed to help too.

I wish I could give you more answers because I know how horrible that can be. My nausea and vomiting stage lasted about 6 months straight, it was the most miserable I've ever been. My nausea almost stopped overnight, it was around the time I got all my blood levels into good ranges everything mellowed out after that. My IIH also started getting better and my stress level reduced with therapy, then I lowered the diamox too, so I'm still unsure what helped most.

Sending well wishes and positive vibes your way, I hope you feel better soon! *gentle hugs*

when i had a really bad high pressure headache i would get dizziness and i would feel horribly sick, but it wasnt a regular occurrence for me - it was the sign of a particularly bad head day. then once i started on diamox and topamax i just felt sick all the time - however my dizziness eased off (mostly cause i didnt get so many of the 9/10 headaches) but i did have to end up on anti sickness medication too (although again with variable results) - i agree with the tiny meals, but i also had to avoid rich food. i had started off on just dry toast which my nuasea liked - but i soon found out the gluten didnt like me, so that wasnt helpful.
the feeling sick eased the longer i had been on my medication, but it is only now i have come off the diamox that i realise how much better i feel all the time on the nuasea front. so i guess for me some of that couldnt be helped but at least getting my pressure down and getting used to the medication eased some of the worst of it for me.

Thank you all for responding.

I don't feel so alone in dealing with this and you all gave me great advice, esp with eating smaller more frequent meals, the morning smoothie/foods I can tolerate and to avoid rich foods.

I'm not on any IHH medication since I had my VP shunt but I guess my pressure is still too high and I need to get my shunt adjusted (I have an appt, with my NS in Dec since he is out of town at the moment).

Thanks again for everyone's help.