LoriChallinor
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- On Feb. 13, Keir celebrated his second re-birthday. He seems to be doing very well but I still get incredibly anxious over his routine checkups. I just hate them. He still goes every three months. How often do the rest of you see your doc post...
- Keir is doing well - went ice skating yesterday and is jobhunting. in two months he'll have his 2nd year transplant anniversary. Thanks for all the support and prayers- invaluable.
- Every now and then, Keir will just feel fatigued and I've noticed his general stamina is not what it was prior to his illness. Of course, I get alarmed with every episode of fatigue, since i'm forever fearing relapse. I feel i can be quite open...
- I finally figured out how to sign back in to this group! Please know you are all in my thoughts and prayers.Keir is now 18 months post sct. He is looking for part time work and seems to be doing well. We are still with Loyola and he has gotten...
- Last Thanksgiving, Keir and I had to stay home while our family gathered elsewhere for a meal as he was neutropenic. This year he can go with the rest of the family, and I am so grateful he is here and for all the prayers, advice, and support (and...
- Just a quick update on Keir. He is well,though battling a bit of depression and loneliness. He's bored and wants to resume a normal life. So far, he has had only one set back, an infection (entera virus) but fought it off well. However, he goes...
- Hi all,Keir is now 7 months post transplant and had started back to school. On Thursday he felt congested. We called the clinic and they suggested Sudafed, along with the usual warnings about watching for fever. By Saturday he seemed a bit...
- Hi all,Keir began school (part time) last week and so has been a bit tired. overall things seem to be going well He is nearly 7 months post transplant now. Today he was feeling rather fatigued and it scared me but everything scares me Keir goes...
- Has anyone heard from her? She has been on my mind so much of late and I hope all is okay.
- Wherever we are in our walk with this condition, i suspect dealing with uncertainty is a large part of it. For me, it is perhaps the worst part. When my son was diagnosed almost a year ago, my life pretty much upended and has been chaos ever...
- First, I want to thank Dave for updating the list for me. For those of you who don't know, I have long had severe OCD and an anxiety disorder. Not that this is an excuse, but at times, my ability to function is compromised under extra stress and...
- This topic has been addressed here before and I apologize for the redundancy. Keir is now about 125 days post transplant and doing very well. His hem/on has aid as long as he feels well he only needs to be seen every three weeks for bloodwork and...
- Keir is about Day +108 post transplant now (I'm losing count) and as far as we can tell all is going quite well. On Monday I took him to Loyola to have his dressing changed on his Hickman catheter port and the nurses were not happy with the...
- This coming Friday will be Day 100 post transplant for Keir. His counts are good. He feels quite well. All seems to be going as planned.The bone marrow biopsy is Thursday. I need tell none of you what those can invoke anxiety- wise. Please pray...
- Keir is now two weeks away from his "100 days" post transplant. So far he has been fortunate in that he has not had any infections or real difficulties other than some difficulty sleeping and some occasional stomach trouble.His counts are okay -...