LoriChallinor
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- Tomorrow is Keir's clinic visit. I have been having a very rough time with his falling platelets and bouncing numbers. The doctors have NOT been worried, no blasts and Keir has felt well.I need some encouragement. I am struggling badly with this....
- Keir is apparently experiencing the "sixty day slump" with his numbers, especially his wretched platelets. However, the doctors are NOT worried and do not plan (unless something really changes) to do an extra bmb. They explained that they numbers...
- It has been a while but Keir is nearly at day 50 and I wanted to update. He is doing basically well. He has not had fevers or other serious problems. We go to clinic twice a week for blood draws. My main issue has been the bouncing around of his...
- I have not been very good about posting here - apologies. Please know you all remain in my thoughts and prayers. Just a tough time for me emotionally, I think. Keir is at Day +26 after his bone marrow transplant. He is doing quite well. Lack of...
- I realize what an awful and sad time on the board this is and hesitate to post but wanted to update people on the situation with my son, Keir.Pending final donor clearance (he just got his physical late last week) Keir enters Loyola Medical Center...
- Keir completed his third round of consolidation. This is the one that we'd all hoped to avoid. He had a few issues but nothing that delayed anything and is home doing well right now. He goes to clinic tomorrow and also we see his doctor. ...
- Loyola often does consolidation with Ari C differently than Rush, apparently. Rush admitted the patient for all five days. Loyola admits you for the days you receive the chemo and often you go home in between, from what I got - anyone familiar...
- Because the new donor cannot give cells until Feb. 12, the team at Loyola feels Keir should have another round of consolidation therapy. He would probably go in next Wed for this. Then another bmb, presumably, then enter the hospital Feb. 4 for...
- After all this, the donor nor the center will allow the cells to be frozen. So they are trying to work up a new donor urgently.I don't even know how to begin to deal with this. Keir had a lot of potential donors so I hope one can be found in time...
- Today is the first day we haven't spent much it on the road or at various hospitals. U of C is still consulting today and getting back to us but based on the options they outlined versus what Loyola said, Keir feels he wants to go with Loyola. ...
- Keir's platelets tripled and his neutrophils went up significantly too as did most of his other counts. However, .9 blasts was noted on the blood. The hem/onc at Rush said this was common, something they often see in a fast recovering marrow. I...
- I will start by saying I am in a state of shock and confusion and apologize for any disjointedness:They want to delay the transplant 2 weeks to see if Keir's heart improves with the meds, but the cardiologist signed off - this is the transplant...
- Keir had his first pre-transplant test today and we hit a speed bump. His ejection fraction was low (25) and now has to get clearance from a cardiologist. He is asymptomatic. His hemoglobin and platelets were low and needed a transfusion...
- Keir is now home from his second consolidation. He had a few issues with an accelerated heart rate on exertion but the EKG was normal so he was discharged as planned and we were told he tolerated the chemo extremely well. His identified donor has...
- Keir has finished 2/3rds of his second consolidation. There were no issues at all until this morning, when he had some tachycardia on exertion. When he rests it stops and his heart rate goes to normal. They have him on a cardiac monitor and told...