madoak
Status:
Mood:
Ok
- Hello, following an earlier post, I still have no clear diagnosis, but having seen my neurologist a year ago, he has suggested that I trial mestinon after having a few more tests. This was after not being able to speak, swallow or breath very well...
- Hello, after EMG results showed a pre ganglionic loss of nerve signal to shoulder muscles and hand, I wondered if it were really MG and not just a spinal problem after an accident. Bloods were normal. However, recently walking has become hard, my...
- Went for the results of my EMG in London last week - definitely not myasthenia but it seems that I have had a brachial plexus injury all along. I did have an accident in 2011. Haven't been sent the report yet but the neurologist summarised that I...
- Okay, the first blood test came back negative which threw me- not incidentally done by my current neurologist. Apparently I was tested for the acetycholine one and not the muSK. I don't understand why both weren't done at the same time but anyways...
- Just been told that my foot operation designated for next Tuesday has been cancelled until I have a definite yes or no to Myasthenia. Frustrating really as I had the blood tests done three weeks ago and still nothing at all back and they couldn't...
- Hello.I've been using this site for a number of years following a serious assault where I was pounded in the head in a sustained attack at my place of work. Since then I have been on a roundabout of ill health that no medics seem able to...
- Hi, I cannot remember if I wrote about this before but here goes. Does anyone have the problem where you feel deeply upset about something and then slowly, over many hours you remember what it was that made you feel that way. In the meantime you...
- I was literally going to write the same thing as a previous post where the person writing has the dilemma of chronic symptoms and nothing inflammatory showing. I have just got clear blood tests back. I have a constant sore mouth, dry cough (2...
- Made a decision to not pursue the disability benefits any further as it was becoming very stressful - not fair, I know but it was too much. I am preparing for my casual seasonal job in a wildlife park. Very difficult as have to learn lots of...
- It wasn't funny at the time but I just have to share this. On Saturday night I went with the Rector of our church to Salisbury Cathedral for an advent service. For my friends in the U.S. Salisbury Cathedral is the most amazingly beautiful place...
- Have just been told today that I am no longer able to have my industrial injury disablement benefit. On the basis apparently that my only problem is that I can't handle stressful situations and that my injuries are soft tissue only. I have no idea...
- My current issue is not wanting to see people. I just want to see family or at a push, strangers who I can pass the time of day with. Everything seems too much and I can't keep pace with discussions etc when I'm feeling fatigued like this. ...
- Just picked up on a really important thing that cheesecake said in relation to PTSD and BI. That was, past and present being muddled or experienced differently. The problem is something triggers the flight/fright reaction in me and I end up being...
- Managed to secure a placement on a community farm and starting tomorrow. Nervous but excited. Had a bad week of lethargy and also paranoia/ depression and backed out of a therapy assessment. Felt mistrusting and not ready for it. Was fed up and...
- I wonder if anyone else has got to a what now?!! point. I managed to do some retraining last year and just about coped even though it was terribly difficult and I had a major surgery midway. It involved animal care and management and I loved being...