I get that during flares. I will get up, strip down, and sit under a ceiling fan for a while. Then it passes and I feel chilly, need a covering to go back to sleep.

It seems so crazy to be all hot and sweaty, then an hour later feel chilly...all at the same room temperature. It's been happening to me for decades...thankfully not too often.

In addition to Lupus, I also have Polymyositis, and felt like my body's "thermostat" was broken. Several other people on the myositis forum have this problem, so I blamed it on the PM. But I recently read that Lupus can affect "homeostasis," which I believe is the body's ability to regulate temperature. So it probably is something that goes along with certain autoimmune diseases.

I have night sweats, day sweats, anytime sweats. I have been diagnosed since 2007 and am 49 years old. They tell me I'm in full menopause so that is what I account it to. I'm tired of being told that every problem I have is due to lupus and there is nothing that they can do for it. My sweats start slow and by the time it's in full sweat, it's like I just had a shower because my hair is soak and wet. It seems like my sweats are just from my shoulders up though. I wish there was something they could do for it.

i too have the dreaded sweats,anytime i can break out..but i am in menapause..full hysto a yr and half ago and no treatment...but was getting these for yrs prior,,,

the worst is the ones i get as fading off to sleep..i break out and its all over...but other times from slight heat its my brow and face dripping..idk but i dont like it as i know yall dont either!!!!!

Well I think we can say with confidence that my night sweats are not due to menopause...LOL.

I think that one of the problems we have in talking about lupus symptoms is that most lupus patients have other illnesses that they've picked up because their immune systems couldn't defend against them. So how do you know if a particular symptom is from lupus or from something like myasthenia gravis, which is a very common "complication" of lupus?

I'm not recommending this, but for myself I've given up trying to get relief from my symptoms with medical treatment. Nothing the doctors have recommended or prescribed in the past twenty years has helped me even the smallest amount. And honestly most of it made things a lot worse.

That could be due to the area where I live, I don't know. Our doctors here don't seem to be very knowledgeable.

lol...richied i geuss yours is not from the change of life,,i was going to ask here what meds work for different symptoms,but you seem against them all because the failed to work...wich makes me wonder if getting a clear dx is even worth it

is there not anything that helps you?

I have night sweats. After a seizure my neurologist put me on gabapentin. I noticed I wasn't waking up drenched, but I didn't realize it was the gabapentin until I stopped taking it. Now I'm taking a low dose at night for the sweats.

man!!!!!,,i just awoke from one of my most worse sweating or should i say drenching!!!,,not to mention it was and is cold in the house,,,had to change all my clothes and bedding....ughhh

I was prescribed a corticosteroid of some kind a year and a half ago, Miranda. It was related to surgery, don't remember what it was.

The problems with my legs cleared right up while I was on that medication, and I could walk without pain for the first time since the mid nineties. As soon as I tapered off the meds, everything came right back...all my symptoms.

But I'm not enthusiastic for taking corticosteroids on any regular basis, so I haven't done anything with that info. After getting brushed off by so many doctors, I've lost my enthusiasm for getting a diagnosis. I can't afford specialized care anyway, so I just try to take care of things on my own.

I would like to try Plaquenyl, but finding a rheumatologist who would listen to me after getting two "negative" ANA tests seems like it might be really difficult. They'll probably insist on a battery of tests and I just don't have enough cash for that on my retirement income.

The lab wouldn't even give me or the doctor the results of the ANA, they just said "negative" on the report. So I'm more or less fed up with all of them. Sometimes I doubt if they even tested the blood, it's a difficult test that uses expensive reagents. Labs will take shortcuts sometimes. Sending the same blood to different labs often produces a wide range of test results, investigators have found.

My illness seems to be "stable", and lupus is not usually aggressive in older patients. So I try to live with it as best I can.

What timing to see this post! I am not normally one that sweats a lot at all. I am also newly diagnosed for a couple months now, I was laying in bed trying to sleep night before last and I just started sweating and it was cool in my room, I literally had to change my top. Is this from the lupus? I hope it doesn't happen a lot, It's gross and I don't like it!

wow, well i'm sorry anyone else has to deal with this too, but didn't know so many of yall do! It is gross, if I shower at night, i have to shower in the morning too, since i just sweat all night long.. I knew this was the case and had been told by my hubby for a while, but it wasnt' until the sleep study people kept coming in to reattach the electrodes commenting on my sweatiness that I thought.. huh, is that really not normal? haha..
I was on prednisone for only three days once .. it made my heart race, made me sweat A LOT... felt like i was going to kill over! (i have some muscle/neuro problem).. it made me just feel awful, i couldnt' take it!

oh and I take plaquenil (my ANA is always elevated- highest was in 1:800 something).. and it is great.. I highly recommend it.. If i miss a few days and when I had to back down on my dose after the loading dosage my joint pains came back and I remembered how bad I felt.. when I take it normally I can hardly imagine what my joint aches feel like.. I think it helped with my muscle energy a little too.. It doesnt' have many awful side effects, so it seems like a dr would try it, but who knows!

Bny, your dosage of Prednisone was probably just too high. I react strongly to meds and have to lower the dosage on them.

Prednisone can be really important when you have a severe flare, don't write it off based on a trial at one particular dosage. We all react differently to meds, doctors should be taught that in med school, but apparently they are not getting that information. Or maybe they slept through that class.

I can tell you that most pre-med students didn't pay much attention to the lectures in the classes I took with them. Usually they sat in the back of the room and talked among themselves.