Northernelf
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- Been at this a couple of years. I am in Canada & "pushing" Hizentra 5x a week. My IgGs are up in the right area but I still have issues.My main complaint is joint pain. I have bilateral mostly limb pain and fatigue. Cold weather is killer. Every...
- Hizentra has kept me from getting sick all winter (yay) but the last few days I have had that familiar rawness down into my left chest & sore throat and soreness under my jaw. The weather has changed pressures up, rain threatening so my joints are...
- It's been so quiet here...thought I'd add a topic !!!Anyone out there been diagnosed with Fibro ?I have been on Hizentra for 2 years, low IgG..but for almost 5 years I have been looking for answers for major joint pain, pain that has progressed so...
- Anyone have experience with these ? I can't seem to find much description on these. I don't think I get mouth ulcers but I do get blood blisters in my mouth - you the kind like what you get when you bite your cheek...only I don't bite my cheek. They...
- My left hip started bothering me yesterday - shopping with my daughter. It's on the outside...sounds sorta like bursitis. Sitting seems to releive it a bit but walking, standing, lying in bed - o my ! It took me almost 2 hours to get to sleep last...
- Yep, there is that list of 11...mostly for a diagnosis (4/11) but I was wondering if there were some other common (and less common) symptoms people were experiencing. I do not have a solid lupus diagnosis - I likely have "mild lupus" as per my...
- I have been on Hizentra for almost a year...going to my annual check up with the hemotologist in a couple of weeks. I don't seem to be getting sick as much or as bad (yay) but things aren't normal, that's for sure.My main issues are around joint...
- I am currently on Plaquenil 200mg 2x a day, but only for a month so it hasn't kicked in yet. My internist wants me back in July and wants to add methotrexate. I had a positive ANA and he sent me for more blood work - dsDNA, C3/4 complement, Anti Sm,...
- Internist is leaning to Lupus, on top of my CVID (immune deficiency). For a week I have had horrible pains under my ribs on the sides, radiating to my back. Spent some time in the Emerg on Monday (holiday) to check it out - blood & urine all clear....
- Guess this is it - I have to modify my life. Entering week four of sickness - chest infection that won't go, sinus infection that has joined the party...probably some sort of gastritis issue to boot. I finished 10 days of antibiotics a week ago, a...
- Hitting a rough spot with this bronchitis and abdominal pain under the ribs (hoping its not kidneys). On antiboitics again and waiting for abdominal ultrasound results. Spoke with my blood disorder nurse this morning. My IgGs in January were either...
- Had a pretty good week.... maybe too good. :-(Went to a walk in clinic this am, bronchitis. Maybe that's a good thing (was worried it was pneumonia... but no 'crackling'). Doc put me on a heavy duty 10 day antibiotic - moxifloxacin. $$$$Anyway... it...
- I went for an abdominal ultrasound this morning, set up by my internist. It was a fasting ultrasound and the tech focused on my upper abdomen. From what I have read it was likely to look at kidney, liver, spleen...?Just wondering if anyone else has...
- Thought I would start a new thread so as not to hijack the Bone Pain one.JulAvendano asked about weekly versus bi-weekly infusions.........so what is everyone doing ????I 'push' Hizentra 5x a week....10ml (2g) four of those days, double that on the...
- I have CVID (ie. crappy immune system!!!) and am on Hizentra infusions to build up my IgGs. Anyway...my joint pain is crazy but my blood work is negative...well, for the first time my ANA is "slightly elevated". We CVID folk don't make antibodies...