Northernelf
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- Two days of 5 hour drives, cold weather - extreme joint pain. In waves, big ache and the feeling of needles poking into the joint - fingers, wrists, elbows, knees, ankles...hips cranky too (bursitis I think). Dropping things and so very tired.I am 6...
- A question to everyone....any experiences with Bursitis ???I have CVID and a lot of joint pain...probably also tendon pain as when it is really bad it radiates... and definitely bursitis. In the past I have had sacroiliac pain and I may have...
- Some posts here got me thinking... a lot of us are feeling the stress of the holidays. Many people do... busy schedules, cleaning, cooking, etc. CVID makes it worse IMHO!!We need a thread on coping mechanisms !!!Rest is huge... as is finding ways to...
- I have CVID - my IgG level is low so I am on plasma injections to pump it up. My journey started with joint pain, which in 3 years is at an all time high! I am in lots pain, very symmetrical. Weather changes kill me. My condition means I don't make...
- My journey started with looking for a reason for joint pain - basically most the joints in my limbs. Then I started getting pneumonias that wouldn't resolve easily...and fatigue. (I also have a history of GI problems, ear infections as a kid,...
- For 3 years I was on a journey to determine why my joints hurt so much. It just got worse & worse - saw a neuro, couple of rheumies - blood work did not support an autoimmune, minimal swelling of joints (painful hand, wrists, elbows, knees, ankles...
- So I spoke with nurse today and my IgG levels have gone up into acceptable ranges (ideal is 6-16, I am sitting at 10....don't know what the units are). So, basically, I passed the lab test but nothing else has changed. Real life - I have another...
- On a posting roll...I was curious how may of us have an issue with gluten. The article I posted and others mentioned celiac like symptoms and even intestinal damage in CVID folks...not calling it celiac. I read something this morning saying that...
- It's rainy & I feel like I got run over by a truck. ;-) Joint aches, stomach cramped, chest heavy & mucousy, awake most of the night...which means this morning I am pumping coffee and reading about CVID. Anyway, found this...
- So, heeding the great advice I get here, I am thinking of a career change. Currently, I am a fitness instructor at a studio & a pool...and a lifeguard. I teach 12-14 hours a week. I have gone from doing most of those classes to instructing almost...
- I am just getting over a persistent bout of pneumonia and have been instructed to do my Hizentra daily for two weeks to get my levels up to fight it off. That 2g a day.A few days ago I developed what looks liked hives on my torso, spreading a bit to...
- Finished the last round of antibiotics....doc says chest sounds clear but still take it easy for a bit so it doesn't come back. Talked to my SubQ nurse and she says up my 5x a week Hizentra to 7x for two weeks to get back on track and then take it...
- Last Tuesday (today is Monday) I saw my doc for another issue and had him check my chest because 6 day after a week of antibiotics I was starting to feel ill again. Pneumonia.....he said my chest sounded horrible and gave me a week of amoxilcillin &...
- As I wrap my head around this I am very sick right now - coming out on the upside, getting over a chest/eye/sinus infection - a very brutal one - you know the kind where you lie there with your eyes closed, waiting for time to pass & the antibiotics...
- Just getting started with this - hyzantra 4x a week @ 10 ml. Tonight I will do my 4th injection and I woke up today with a chest cold and eyes sealed shut from infection...eww. I guess that's why I was so drained yesterday !I know I am just getting...