I am on IVIG every 3 weeks. I infuse over a total of 2 days. When I did SubQ in the past I did it weekly.

Usually IVIG is every 3 or 4 weeks, and subQ is weekly. It is otherwise tweaked to the individuals needs along with dose, etc.

You may need some tweaks or a dose increase if you are still getting sick. SubQ is typically weekly. I have never seen it done bi-weekly as it exits our system much faster than IVIG, and if it is spread out too far you won't be able to reach an optimal or stable level of therapy. Hope that helped in some way.

Hi Elf,
I do subq Gammagard 12 grams once a week for now. I saw my immuno on Monday and he checked my levels. I've not heard what they are yet, but he suspects I need a dose increase because I am also still getting sick. I got bronchitis and went to the doctor on February 2nd. I have been on antibiotics ever since then and am STILL coughing up dark yellow gunk with an achy chest. He wants my level to be at 1000-1200 but closer to 1200. I have no idea how much gammaglobulins it will take to get me there. I know I'll have to do more sites because I'm at the max per site. I don't know, but I think he may decide to divide the dose. We shall see.

My joint pain has calmed down since I started treatment, but it is still there. I'm also on Celebrex 200 mg a day for joint pain and it keeps it toned down. I've not had any fighting the urge to scream pain since I've started Celebrex, but I still have some in tears pain.

I hope your hematologist can answer your questions much better than me when you see him in the summer. Keep us posted.
Love and hugs,
Ashlee

I do Hizentra sub Q weekly 8 grams.

80 ml (4 bottles) of Hizentra every week Subq.
F900 flow rate.

I do 12 grams weekly of GG in 5 sites. Have you considered a dose change? Many people have had problems with Hizentra and things like levels dropping and infections were common complaints. Are you have lots of reactions and thats why you are pushing 5x a week?

I am on Gamunex-C every 4 weeks, we are still tweaking it. I get a horrible headache so I take Tylenol & Benadryl before and afterwards for a couple days..

Feel Better
Cheryl

I am on Gammagard subq weekly. 15 grams in 5 sites. Big difference when my dose increased from 10 to 15. My levels were close to 1000 when my immuno increased it. I just got the call to make my appointment for my blood work and check up again so I'll get to see how things have improved. We have talked about sitting my dose before but that probably isn't necessary anymore.

Hi Guys, I'm on 9grams (45 mls) of Hizentra weekly & have only had 1-2 infections since I went on it. I see my Immuno every three months after he does my every three month labs. My levels have been consistently around 950 which is what my Immunologist says is optimal. I was getting sick really frequently, but less so now.

At my last Immuno visit I discussed the bone pain after infusion issue, and in trying to solve that my Dr. said that some new research has been done with Hizentra & there are new guidelines & research out suggesting that the levels will hold for two weeks in patients bodies. He has given me the option to 1) infuse bi-weekly as to reduce the number of severe pain days or 2) Spread out the 9 ml infusions & do them a little every day as to reduce the amount of pain from infusion. I see him again next week, but wanted to see if any one has benefitted pain-wise from a change in the infusion schedule?

Kelli - I am in Canada - pushing seems to be the way to go, I'm not sure why. Maybe the idea is that regular intervals keep the levels constant...I don't know.

I went in to see the hematologist to see about this condition I was dealing with in August and after a short visit (after a 3 hour wait) I was put on hizentra and sent off to a nurse to tell me how to inject it. My head was spinning, didn't get a lot of questions in !

I did my bloodwork today, I am curious to know what my levels are as I have a lot of 'junk' in my chest and am coughing a lot. My levels were 900 in January.