mj568

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Is it just me

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I have an odd question. Since having PEs and being on Coumadin I have had a lot of trouble with cold hands and feet. I have always had difficulty with my fingers and hands going blue in cold weather. ( even the supermarkets will cause this)....
Surgery success

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I have had 2 teeth extracted today! Under anaesthesia at the hospital..I stayed on Coumadin and went in with an INR of 2.7.My surgeon was fine with this as I it was considered less risky to leave me on it.Anyway it all went well, the bleeding was...
MTHFR gene query

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I have had some results back from my haematologist. I have defect in the MtHFR gene x 2. I understand it is a risk factor for clots which in combination with the other genetic hiccups I have put me at a way higher risk of clotting.Does anyone...
Wrist broken

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So, I went out for dinner on Tuesday. Fell off my chair and fractured my wrist. Also injured my back again- had a pinched nerve that was finally settling, now back to start of recovery again.Funny thing is I don't have any bruises! I have been...
Iron infusion

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Iron infusion has become my only option. Bit stressed.The drs cannot tell me yet why my iron has dropped.
Goal achieved

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When I was in hospital with my 2 nd PE I made a list of things I wanted to achieve in life. One of my goals was to take my 5 children for their first visit to the snow. I DID IT!!!!5 hr plane ride + 3 1/2 hr drive and we played in the snow.Dealt...
Snow and PE lungs question

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I am planning a trip to the snow with my children in a few weeks. I live in Oz our seasons are upside down. It will be their first time and I haven't been to snow for over 30 years.It's on my list of things I want to do that I made when in hospital...
Another clot :(

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Hi,I have had another clot in the artery of my eye.Had partial loss of sight this time and felt really unwell for a few days. It altered my depth perception so everything was really odd.Booked in to see a new haematologist in a few weeks so...
GOOD news for me

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I had an occular vascular occlusion a couple of months ago. ( Blood clot in artery behind the eye.)I have recently suffered a DVT whilst being therapeutic on warfarin. I was also therapeutic with the eye clot.I have a rare genetic condition in my...
A fear conquered!

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So today I conquered on of my few fears brought about by my PE experience. Since having my second PE a year and a half ago I would not travel far from home. I had a definite safe zone that was close to the hospital and close enough for an...
Vascular occlusion of the eye...help

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Hi.I have had PEs twice and am on Coumadin for life. Clots were unprovoked.My last PE was just over a year ago.A couple of weeks ago I lost vision in one of my eyes for a short time. After this happened a couple more times I went to see the...
Happy clotiversery to me!!!

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Hello everyone,It has been one year since my 2nd PE and 1 year since I found this site.Although I do not post often it has been hugely helpful to read the various discussions. Quite often someone will be experiening what I have been questioning.I...
New!!

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Hi. I'm new! I have been reading for a while. I had multiple PE in November 2011. I also had multiple PE in 2008 during pregnancy. I had thought that the pregnancy contributed to the first PE and if not pregnant then I would not get another. ...

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