Kimber71
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- I know I have been around in a while. Been on my own "roller coaster". I have decided NOT to have the full sternotomy thymectomy. My neuro and I have been going back and forth on this for a while and I am not sure what he will say when I give him my...
- I was Walmart and saw oxygen for sports use. About the size of a can of air freshner. I thought it was kind of ridiculous at first but then I thought maybe it would be good for when MGers are having breathing difficulty but not crisis. What do you...
- So you guys know how I am when I'm bored. I need entertainment. So I an starting a hospital humor thread. It's up to you guys to make me laugh.I'll start.The nurse walks in and says "I noticed that you've been going to the restroom a lot. Why is...
- Today was the second time that I have had some very unusual symptoms. I can't figure out what is causing this. I am not even sure that it is even MG related. Both times I had just eaten (different types of meals) and some alcohol. The alcohol was...
- OK so when I was having symptoms but had no idea what was going on I stayed cold the majority of the time and I tolerated heat well to say the least. Including camouflage utilities, boots, flack jacket and helmet to up to 153 degrees. No I wasn't in...
- We seem to be dealing with tough times everywhere and every way. With several of us being in the hospital, initial shock for newcomers, dragging diagnoses for others and add in the heat, fires, flood, wind and other things it is a tough time! I am...
- The last several weeks my MG has been worse. More tired, clumsy, Bobble head etc. Also I have these one-off muscle ticks. All over. Though I have noticed significantly more in and around my eyes, mouth and face area. No MG ocular symptoms. Not...
- Last night I had another horrible calf cramp. They come and go from time to time. Wake me up in the middle of the night. So bad that I can barely breathe until I use pressure point to relieve the cramp. The next day it is sore like I had a big work...
- As my symptoms increase so do my frustrations. I can't help it. I am so exhausted. Even the smallest physical labor feels like I'm doing 10 times the work. I can only spend so much time in bed or resting. It just seems like even though I do my best...
- OK. I'm having kind of a tough day physically and could use a good laugh to help me feel better. Give it your best shot.Kimber
- Ok so my neuro wants to do a sternotomy thymectomy. I am 40 and seronegative. I saw my father go through a sternotomy for a quadruple bypass. Now I know it is not nearly the same. It should not involve chest tubes for drainage and no cuts on the...
- The recent amount of posts talking about crisis has left me wondering. What percentage of MG patients have a crisis (ever)? Was there a precursor? In the reverse, what types of MG patients never have crisis? (if there are any typical indicators.)...
- OK I got diagnosed this month and the only thing funny I can think of was when I was talking to one of my sisters about an MG walk. My sister is not overly active and does not enjoy a workout if you know what I mean. I told my sister should would...
- Can you tell when you are slurring your speach? Or does it sound normal to you?At first I thought I didn't have slurred speach just the occassional difficulty speaking. Not that I knew what was wrong then just that my mouth was not forming words...
- So what happens when you push your body over the limit when you have MG? I am used to pushing my self physically. I was an active duty Marine and I am currently a Navy Reservist (at least until I get all of the info together to tell them about my...