Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Regards
-josh
b.
My speech gets slurred when I am tired. My friends and family notice it sometimes before I do. The movement of the mouth causes it. If I want to prevent it I have to stop eating hard to chew foods and stop talking. Our speech muscles are just in tune and just like the rest of our body. It gets weak.
Ann
When my speech slurs? I can also count on some minor swallowing problems. (Anything more than a pill, at least for a while.)
My slurring is also interpreted by others - as mere mumbling, as if I just need to speak up, a little.
If I am talking with someone, just conversational? The slurring shows up, anywhere from 10 to 20-minutes, in.
After 20 to 30-minutes? The slurring is bad enough?
Even I - can't tell - what the 'ell - I'm saying!
But the couple of times when it has been really bad I KNEW I couldn't talk. My tongue felt fat and my lips felt weak. I laughed as I tried to get words out and sounded like I had a MAJOR speech impediment. I lost my ability to use some letters like Ss, Fs and half of my Ps. Those incidences coincided with swallowing/breathing issues... so it is something to be cautious about.
Love, Becca
I think part of being a teacher has made me notice it more, too. I also know that my voice will not sound like it used too. It quivers and is sometimes hoarse...
My voice is always hoarse, now.
But it gets - more hoarse - as I begin to slur my speech.
(Too many symptoms - and not enough brain cells - to remember them all!)
I went on steroids straight away and the voice (and the swallowing and facial muscle control issues which started soon afterwords) have gradually got much less. Now my voice goes only when I excersize my legs. I can talk as much as I likewithout causing a problem but it only takes a short walk down the road to make me really hoarse and quiet and turn my smile into a snarl which is much worst for social interactions than having to whisper. MG reallly is a weird disease.
So to answer your questions Kimber, I can always tell when I am getting hoarse and quiet and my initial speach problem was followed by other symptoms over the next couple of weeks although thanks to the steroids they seem to be getting less
When first diagnosed, quite often my speech was slurred and nasal sounding. I also had some swallowing and breathing issues. I haven't noticed much of that anymore but at times, I do have to up my mestinon when people start asking me to repeat myself and I don't realize I am sounding any differently. I too get hoarse sounding.