Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Today was the second time that I have had some very unusual symptoms. I can't figure out what is causing this. I am not even sure that it is even MG related.
Both times I had just eaten (different types of meals) and some alcohol. The alcohol was also different types of drinks. The first time was literally only a few sips. The second I did have 2 drinks but far from drunk.
Now the symptoms:
It starts with dizziness and a feeling of being almost out of body. Kind of like being really drugged up on medication or being very drunk.
Then very nauseated. Visibly pale with purple lips. Profuse all over body sweats. Literally dripping sweat in cool temperatures. I also have some minor breathing problems. Like hyper ventilating to a small extent but I am not scared or panicked.
Now this its the weird part. Both arms from the shoulders down go somewhat numb and tingly. It feels as if they have fallen asleep from the armpit down.
All of this lasts about 20 minutes or so. Then I lay down and am completely out for about 3 hours. Which is about 2 hours longer than a normal rest time.
Three last time it happened I called the neuro and got the nurse who said if it happened again to go to the ER. I didn't go this time because by the time I would have even gotten to the waiting room it would have been over. The only thing different this time is this evening I have been very hot even though I remained indoors.
Thoughts?
Kimber
Both times I had just eaten (different types of meals) and some alcohol. The alcohol was also different types of drinks. The first time was literally only a few sips. The second I did have 2 drinks but far from drunk.
Now the symptoms:
It starts with dizziness and a feeling of being almost out of body. Kind of like being really drugged up on medication or being very drunk.
Then very nauseated. Visibly pale with purple lips. Profuse all over body sweats. Literally dripping sweat in cool temperatures. I also have some minor breathing problems. Like hyper ventilating to a small extent but I am not scared or panicked.
Now this its the weird part. Both arms from the shoulders down go somewhat numb and tingly. It feels as if they have fallen asleep from the armpit down.
All of this lasts about 20 minutes or so. Then I lay down and am completely out for about 3 hours. Which is about 2 hours longer than a normal rest time.
Three last time it happened I called the neuro and got the nurse who said if it happened again to go to the ER. I didn't go this time because by the time I would have even gotten to the waiting room it would have been over. The only thing different this time is this evening I have been very hot even though I remained indoors.
Thoughts?
Kimber
Kimber
Doesn't it, Kimber?
I've heard of this before.
But never experienced - anything like it myself.
I'll ask around, my local network of people.
- Ross
That sounds very scary x2! My first thoughts were that it sounds possibly cardiac. Be very careful. Even if it is over by the time you can get to the ER it might be a good idea to go in and have an EKG.
Will you call your neuro today?
Cathi
My Mestinon and alcohol don't mix, although I have not had anything to that extent. I am having drops in blood pressure (me with the 300/100 in the doctor's office). I have cut my BP medications in half, but still having problems, will see the doctor Wednesday. You said you have hypertension as well and would assume you are on medication. so it could well be drug interaction, but check it out and let me know! My cardiac work ups, for MG symptoms as it turns out, were, all negative. b.
I did have a period where my BP was up and a doc wanted to put me on meds. My sister was living with me and causing tension in the house. As soon as she left my BP was regularly normal again without meds.
Kimber
Hopefully, they will have seen those symptoms, many times.
They will recognize - how to help you.
Thinking of you Kimber!
- Ross
Certainly not agreeing with you no matter how you look at it.
Keep us posted,
TJ
Just took my BP a little while ago and it was a little high. I was running around a little too.
128/85 listed as Prehypertension
Of course I can't rule out stress either as now I'm kind of worried about the 2 incidents.
Oh and was on the phone with my boss and missed a call from the neuro. (darn)
Kimber
Kimber
One down and how many more to go?
I am thankful for so many of our tests, but sometimes wish they would just look at our fingernails and eyegrounds! Not to mention pay attention to our history.
I sound like an old fogey and they will sort it.
Did you take plenty of entertainment? b.