I can relate. I get them al the time. Six weeks ago I had one so bad it felt like the muscle was tearing itself apart. I could barely walk for days. It cause bruising and was sore to the touch for three weeks. Unbelievable!

Curt

I have read that low potassium can cause cramping. I used to get leg cramps almost every night which almost made me cry out. I take potassium supplements and it helped significantly. At times, with extreme exericise, i do still get them and then i do a stretch dvd and that also help soo much!

Rebecca -

One must be extremely careful with potassium as changing the balance can also cause cardiac arrest, in the more extreme examples, as I am told. Supplementing potassium should be done only under the advice of your physician, in cases where blood tests show a deficiency.

Curt

I just got done discussing this with my rehab doctor last week as I will get horrible calf cramps in just 1 leg after exertion or I wake up in the middle of the night screaming in pain. Potassium level is normal and hydration is good - dehydration will do this also. He suggested icing it immediately so I bought instant ice packs to keep next to my bed to just crack as I cannot stand up to go get ice when this happens. I tried trigger point pressure and that works somewhat - PT taught me that and said it deprives the muscle of oxygen - you really have to push your knuckle hard into the muscle or have someone do it for you. The next day I feel like I have been run over by a truck. Cramping is worse when I have been really active and overused the muscles. Good luck with this - it's not pleasant.

Hi Kimber!
Hi Everyone!

Well - you guys already know, what I'm gonna say.
Mr. PNH-Syndrome, himself. Along with my friend Kerry.

You have to consider the possibility: of a PNH-syndrome.
Which is also an autoimmune-condition, sometimes seen with MG.
http://www.pnhinfo.com

Yes! Potassium levels - are important.
Believe it, or not? So - are magnesium levels.

But neither of these - are anything to play around with.
As you guys have all said, at one time or other?
Only - under the guidance of your Neuro.

Also: as many of you - have made me aware?
Your Mestinon dosages - can play a part.
Many folks in our support group: suffer cramping & its cousins?
Right along - with the ups and downs - of Mestinon dosages.

Hope you get some answers soon!
- Ross

I get those cramps also. Someone suggested not to point your toes toward the end of the bed. It helps when I remember not to do that.

Yes leg cramps and I are becoming familiar bed fellows. The last serious cramp kept me limping for 3 days. I do recall a similar pain with childbirth!

I hope you find a method to relieve the pressure Kimber.
Larissa

These started about 22 years ago during Marine Corps boot camp. They have continued off and on ever since. I usually try to bump up the hydration and food source potassium. It seems to stop them until the next bout some time later.

Kimber

Yes, I have had leg (and feet) cramps that bad before.
It was more frequent for about a month when I started and then when I upped my mestinon. I don't get them very often now.
Love, Becca