Kimber71
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- I just 2 more Tervis tumblers. Rosie the riveter and U.S. service women in uniform. I use Tervis almost exclusively now. They are light weight, easy to hold and keep things hot or cold longer. Add that to my Keurig single cup dispenser and I'm good....
- I got diagnosed in Oct 2011. I have been on only Mestinon since then. I was taking some arthritis meds but we felt they could have been interfering with the MG so I stopped. I recently started Robinul to deal with the stomach issues that the...
- OK so SoulWife and others here have brought up a point that I would like to explore further. Does anyone here have ONLY MG? Certainly not me. I was reading and found on multiple sites that the top 2 additional disorders (primarily in women) are...
- So I'm having some angry days. Just sick and tired of being sick and tired. Chucking down 15 pills a day (on the low side). Exhausted. Feeling like a shell of the person I once was. Friends and family try but they don't REALLY understand. Wondering...
- For balance and fatigue I often walk with a cane. I saw the hurry cane but I like my soft gel handled folding cane. I am constantly leaning the cane against myself or something else only to have it slide off and hit the floor. Some days I think my...
- So I have been having some eye problems. Not droopy eye but focusing problems in general and more often when changing gaze from up close to distant.I called the neuro nurse and she asked about allergies. Which I have been having. My ears and sinuses...
- This is a pretty good video on MG. This rather animated and motivated fellow does a pretty good job of explaining the basics of MG. He however does not do a good job describing Myasthenic Crisis or the threat of death due the inability to breath. ...
- Issues with fine motor skills and balance have been getting much worse lately. When I stand or walk I tend to fall over for no reason. I can be standing there having a conversation and without my knowing it I am slowly starting to lean. I go further...
- Several weeks ago I saw a new neurologist (from the Veteran's Administration vice civilian) and she prescribed me Robinul because I have had increasing problems with my stomach after increasing my Mestinon to higher doses. I have been on the...
- Anyone going to the MG Walk in Orlando FL? I'm going to try and make it.2013 Orlando MG WalkSaturday, March 2, 2013Harbor Park at Lake Baldwin, Orlando, FL
- I stopped drinking energy drinks over a year ago when I was diagnosed. I was drinking quite a bit trying to find some sort of energy. Has anyone had good or bad experiences with them since diagnosis?Kimber
- I was gone for a while so sorry if I missed it but I just found this MG song on YouTube.http://www.youtube.com/watch?v=51jl9RFyBVI(You may have to copy and paste the link into your browser.)Kimber
- I declare Wednesday the day to vent our gripe of the week. Make it even better if you can add a funny story to it. This week:Invisible illness - because other's cannot see what is wrong with you they jump to their own conclusions or say stupid...
- Anyone know where to find easy to understand statistics on thymectomy? I am particularly interested in remission rates for seronegative and positive and robot vs. sternotomy. My doctor won't give me any actual data (or even point me in the right...
- Making the best of what you've got.Halloween is at the end of the month and pictures of some great kids with VERY inventive parents are making their rounds. It all reminds me that we can be as happy as we want to be even when our health is not what...