mcgowanjourney

Activity

• MCTD
  

  Genetic Consultation and Unknown disorder!

  Posted by: mcgowanjourney

  Posted: 06/01/2023

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  May 30th 2023 my world was flipped.I'm probably having seizures and not realizing it. I also was told it's probably causing my headaches. I was also told another test for a broader range of genes. I have to do a MRI of my brain, see a seizure specialist, go to a dermatologist, gastroenterologist, and a neurologist!Testing and least I know my chronic pain isn't in my head. I have done the invitae test which didn't show much so now they are doing a genetic test that is going to check all 2000+...

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  Joined New Group

  Posted by: mcgowanjourney

  Posted: 06/01/2023

  mcgowanjourney joined the group MCTD.

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  Journal Comment

  Posted by: mcgowanjourney

  Posted: 05/21/2023

  mcgowanjourney commented on mcgowanjourney's journal Connctive Tissue Bullcrap

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  Pain and Misery

  Posted by: mcgowanjourney

  Posted: 05/17/2023

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  Having trouble with my knee today. Putting weight on it makes a shooting pain in it happen and I usually can handle pain but not this. It's like a 10/10 for pain. This makes me feel so frustrated. Sometimes on days like this I wish I could have a break but than I realize there is no break because there is no cure and I get so angry. I wish people could understand I just found out a year ago that I was born different. I've been pushed away and lied to by multiple people and specialists. Today is...

• Post-Traumatic Stress Disorder (PTSD)
  

  My Trauma

  Posted by: mcgowanjourney

  Last Reply: mujicaptsd 05/16/2023

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  Everyday I wake up asking why am I here if I live to suffer so much? Everyone who knows me as changed since they found out I'm sick forever. I've gotten pity and people opening doors like I'm stupid and can't myself. I can't just go to therapy because I just don't trust therapists. It all started when I was 12 my brother molested me and I said nothing because I was too ashamed and didn't know how because being autistic made it hard to understand. I found out the hard way when my mom told me...

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  Frustrated and Stuck

  Posted by: mcgowanjourney

  Posted: 05/15/2023

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  Everyday I wake up asking why am I here if I live to suffer so much? Everyone who knows me as changed since they found out I'm sick forever. I've gotten pity and people opening doors like I'm stupid and can't myself. I can't just go to therapy because I just don't trust therapists. It all started when I was 12 my brother molested me and I said nothing because I was too ashamed and didn't know how because being autistic made it hard to understand. I found out the hard way when my mom told me...

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  Joined New Group

  Posted by: mcgowanjourney

  Posted: 05/15/2023

  mcgowanjourney joined the group Neurocardiogenic Syncope.

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  Joined New Group

  Posted by: mcgowanjourney

  Posted: 05/15/2023

  mcgowanjourney joined the group Bipolar Disorder.

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  Joined New Group

  Posted by: mcgowanjourney

  Posted: 05/15/2023

  mcgowanjourney joined the group Obsessive Compulsive Disorder (OCD).

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  Connctive Tissue Bullcrap

  Posted by: mcgowanjourney

  Posted: 05/15/2023

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  Every day I sit afraid and scared. I know the type of disorder i have but not what to do. I'm in psychical therapy but I still don't know the name of the monster i will face the rest of my life. Yes to me it's a monster because it has no name just like the monster in your closet growing up. You don't know what to do or where to turn because you don't have the name to figure out what to do. I feel like im going in circles with a elephant in the room but i can't help it because i don't know what...

• Undiagnosed Connective Disorder
  

  Not Knowing What is Coming

  Posted by: mcgowanjourney

  Posted: 05/15/2023

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  Every day I sit afraid and scared. I know the type of disorder i have but not what to do. I'm in psychical therapy but I still don't know the name of the monster i will face the rest of my life. Yes to me it's a monster because it has no name just like the monster in your closet growing up. You don't know what to do or where to turn because you don't have the name to figure out what to do. I feel like im going in circles with a elephant in the room but i can't help it because i don't know what...

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  Joined New Group

  Posted by: mcgowanjourney

  Posted: 05/15/2023

  mcgowanjourney joined the group Undiagnosed Connective Disorder.

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  Joined New Group

  Posted by: mcgowanjourney

  Posted: 05/15/2023

  mcgowanjourney joined the group CPTSD Support Group.