Neurocardiogenic Syncope Community Group

For anyone suffering with an autonomic dysfunction like NCS, POTS, or other vasovagal syncope and would like to connect to others and discuss, share, and care about one another as we learn to cope with the many challenges of this disease. And remember that DailyStrength is designed to be completely anonymous. The only information that is required is for you to choose a member name that will be publicly visible.

0 Online
  • Group FounderPJamela

    Washing my hair

    0
    This might seem like a weird post, but at least I feel pretty good in the mornings unless I have to wash my hair, so I have started washing my hair every third day or so, because I get too hot when I blow dry my hair. Hey, you do what you've got to do. 
  • crinigirl

    simple hi

    2
    My name is Stephanie and I was diagnosed with NCS at 20 but looking back over my medical history they think I was suffering from NCS as early as 15. I had my first attack at 15 and it was a few years before next... which is why it was diagnosed as something else. My second I awoke in hospital with no understanding of what was going on. I had an attack in my bathroom and had fallen and knocked...
  • gp19

    Pacemaker?

    3
    Backstory and Symptoms:I'm a 23 year old female and I have been told by Cardiologist #1 of 4 that I have Vasovagal Syncope (NCS). I first fainted when I was 10 or 11. It was hot at my aunt's funeral and I hit the deck. I then started passing out from the shower. Luckily I have enough warning I was always able to get out of the shower and pass out on the floor rather than inside the shower. For...
  • southpier1

    Newly diagnosed

    1
     Hi, I am new to this group, I have been dealing with this problem for three years. Last year, I went to the hospital for a week , They told me I have a right Eye  Hypofunction . After a year of the symptoms, and passing out still happening, I did some research, and ended up having the tilt table test, and was finally diagnosed . I go to see the cardiologist on Wednesday,  I have many...
  • deleted_user

    Leg Cramps?

    3
    My Mother was diagnosed with neurocardiogenic syncope, but only shortly before she died (at 85).When she was in her 50's she complained about leg cramps, legs hurting, which continued the rest ofher life. Has anyone else experienced this? The only recommendation by her cardiologist was to wear the very tight support socks. I have neurocardiogenic syncope, but so far managed OK with salt...
  • mega54

    New

    2
      I have fainted a total of four times so far this year. I have no warnng. Thanks to many tests and a loop recorder I am reasonably sure it has nothing to do with my heart. I am confused and frustrated. They have not done a Tilt Table test. They are going to do a sleep study, an EEG, and an MRI. I am taking as many precautions as I can think of to avoid injury from falling. So far, I have only...
  • Group FounderPJamela

    Vacation

    3
    I'm going on a vacation in a few weeks. We're flying from Indiana to Arizona. My husband has a work trip for the first three days and we're taking another 5 days to see the Grand Canyon and such. I'm excited. But I hate flying! I hate the way it makes me feel so high up and I'm always nauseous and can't hear for an hour afterward. I'm taking some Crystallized Ginger with me for nausea. Has...
  • mamavacik

    SO Seeking Support

    4
    Hello everyone,My husband failed the second half of his tilt table test this morning. I've yet to speak directly to his doctor because I've been at work all day, but my husband told me that both of his heart's atria stopped working, causing him to lose consciousness.It's been a long road to get this far - he first began having "episodes" in Feb 2015. Since then, we've been to the ER at least 3-5...
  • WhiteDolphin

    Frustrated!

    4
    Hello, just venting. I am so frusrated at the difficulty of controlling this with medication etc, because stress and weather also affect me and make it worse. I can't tolerate the heat, so I like winter better, but due to other illnesses Winter also makes me hurt more, but I live in south Texas so I don't deal with true winter that often, but I do deal with heat and humidity 90% of the time. ...
  • noah600

    New here

    1
    I am new here and scared about all of this:(
  • deleted_user

    Do SSRIs make the dizziness worse

    2
    HiI'm new to the group, Brand new diagnosis of neurocardiogenic syncope, fainted on the tilt test -although I have been having symptoms for years.I have tried a number of antidepressants - prozac and other SSRIs, and also SNRI, as well as older generation like Remeron and elavil, They all make me so dizzy that I can't lift my head off the pillow. Also gave me hallucinations. Currently I'm not...
  • kmontgo90

    Hello and Introduction

    2
    Hello everyone,I'm 25 and have recently been diagnosed with vasovagal syncope. I have been suffering with it for the last ten years, and was told it was low blood sugar. I moved to Florida back in August to start work at Disney, and had six pass out episodes down there while working for four months so that I was forced to come back home to Jersey and get better health care to figure out just what...
  • tstone525

    Newly Diagnosed

    6
    I was just diagnosed today after a gazillion blood tests, a few MRIs, a few CT scans, a tilt table test, some stress tests, and a few more tests I can't remember because I first started getting tests done when I was 13 and I am now 31. This diagnosis, well today is a happy day, because after almost 2 decades of looking for an answer I FINALLY have one. But I want to know more, and hear stories,...
  • Group FounderPJamela

    Happy holidays

    0
    Well, Christmas is behind us, and New Years is upon us!I just want to wish everyone happy holidays!
  • Group FounderPJamela

    Happy holidays

    0
    Well, Christmas is behind us, and New Years is upon us!I just want to wish everyone happy hollidays!