Neurocardiogenic Syncope Community Group

For anyone suffering with an autonomic dysfunction like NCS, POTS, or other vasovagal syncope and would like to connect to others and discuss, share, and care about one another as we learn to cope with the many challenges of this disease. And remember that DailyStrength is designed to be completely anonymous. The only information that is required is for you to choose a member name that will be publicly visible.

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  • gp19

    Pacemaker?

    1
    Backstory and Symptoms:I'm a 23 year old female and I have been told by Cardiologist #1 of 4 that I have Vasovagal Syncope (NCS). I first fainted when I was 10 or 11. It was hot at my aunt's funeral and I hit the deck. I then started passing out from the shower. Luckily I have enough warning I was always able to get out of the shower and pass out on the floor rather than inside the...
  • mamavacik

    SO Seeking Support

    2
    Hello everyone,My husband failed the second half of his tilt table test this morning. I've yet to speak directly to his doctor because I've been at work all day, but my husband told me that both of his heart's atria stopped working, causing him to lose consciousness.It's been a long road to get this far - he first began having "episodes" in Feb 2015. Since then, we've...
  • WhiteDolphin

    Frustrated!

    4
    Hello, just venting. I am so frusrated at the difficulty of controlling this with medication etc, because stress and weather also affect me and make it worse. I can't tolerate the heat, so I like winter better, but due to other illnesses Winter also makes me hurt more, but I live in south Texas so I don't deal with true winter that often, but I do deal with heat and humidity 90% of...
  • noah600

    New here

    1
    I am new here and scared about all of this:(
  • HiI'm new to the group, Brand new diagnosis of neurocardiogenic syncope, fainted on the tilt test -although I have been having symptoms for years.I have tried a number of antidepressants - prozac and other SSRIs, and also SNRI, as well as older generation like Remeron and elavil, They all make me so dizzy that I can't lift my head off the pillow. Also gave me hallucinations. ...
  • kmontgo90

    Hello and Introduction

    2
    Hello everyone,I'm 25 and have recently been diagnosed with vasovagal syncope. I have been suffering with it for the last ten years, and was told it was low blood sugar. I moved to Florida back in August to start work at Disney, and had six pass out episodes down there while working for four months so that I was forced to come back home to Jersey and get better health care to figure out just...
  • tstone525

    Newly Diagnosed

    6
    I was just diagnosed today after a gazillion blood tests, a few MRIs, a few CT scans, a tilt table test, some stress tests, and a few more tests I can't remember because I first started getting tests done when I was 13 and I am now 31. This diagnosis, well today is a happy day, because after almost 2 decades of looking for an answer I FINALLY have one. But I want to know more, and hear...
  • Group FounderPJamela

    Happy holidays

    0
    Well, Christmas is behind us, and New Years is upon us!I just want to wish everyone happy holidays!
  • Group FounderPJamela

    Happy holidays

    0
    Well, Christmas is behind us, and New Years is upon us!I just want to wish everyone happy hollidays!
  • Group FounderPJamela

    Medication change

    0
    About two months ago, I decided to have an allergy evaluation. I am apparently allergic to anything green outside, dust mites, and my cat (I'm keeping the cat). In order to get allergy shots (which I think will be useful since my husband is an outdoors-man and we go camping every summer), I had to go off Atenonol. Betablockers inhibit the effects of the shots. I had to see my cardiologist,...
  • Recent research has been showing that fibromyalgia is also associated with the autonomic system, in the same way as syncope issues. I found this interesting, since I have both and was diagnosed with both within weeks of each other.
  • Group FounderPJamela

    Allergies

    0
    I recently had allergy tests run. I'm not allergic to molds, but grasses and weeds, dust mites, and my cat cause symptoms. I had to go off the beta-blocker that I have been on since 2009 and was put on Midodrine. Seems to be working okay. I can't take a beta-blocker and receive allergy shots, so I opted for the Midodrine. Just happy I am not experiencing fainting symptoms. Just a little...
  • Hi, I hope there is somebody who can help me here. I am desperate!I have been sick since the beginning of the year and undergone a load of tests.... to only NOW be referred to a cardiologist. I think the other doctors screwed up ..It started with episodes of extreme tiredness and heavy legs, weight gain, falling asleep at work ... to then getting lightheaded, to then feeling like Im drunk, and...
  • Hi Just checking in. Not much activity lately, so thought I'd just check in with you all. I had an appointment with a new doctor last week. He asked me what I had and when I told him NCS he told me "There is no such thing!" He said there is either "Neuro" problems or "syncope" but not both. I told him there was. He asked me the name of my cardiologist, because I said he could verify that...
  • I was wondering if anyone else has their heart actually stop when they pass out? The few times I have passed out in public I have really freaked people out. I think I gave my dentist a heart attack once too. It wasonly after I passed out from standing and got sent to the ER ( I split my head open) and the tilt table test that I learned my heart actually stops when I pass out. 28 seconds on the...