Connctive Tissue Bullcrap
Every day I sit afraid and scared. I know the type of disorder i have but not what to do. I'm in psychical therapy but I still don't know the name of the monster i will face the rest of my life. Yes to me it's a monster because it has no name just like the monster in your closet growing up. You don't know what to do or where to turn because you don't have the name to figure out what to do. I feel like im going in circles with a elephant in the room but i can't help it because i don't know what it is or what is to come. All i'm told is I have a connective tissue disorder and to wait. They always say wait and lately I just don't think I can. I've been lied to or not believed by doctors, therapists and even psychiatrists. I've been waiting 9 months for a referral. Than I get the call and have to wait another 6 months till May 30th 2023. And all I can think is all I want for my birthday is a diagnosis not a if but a real answer. I'm tired of the beating around the bush and I'm tired of the lies.
Replies
If you have insurance, call them and tell them about your difficulty in getting a referral and they will go to bat for you. They will find a doctor that can help you. The reason why I know this is because mine did that for me. They offered to get rid of all my doctors and sign me up with all new ones. If you are on medicaid or medicare then they might do the same for you. You just need to ask.
God Bless
My insurance is denying charges and making it harder instead of easier. Mayo Clinic denied my referral. The doctor in Saint Cloud, Minnesota I see on the 30th is the highest geneticist in my state. Hopefully they get it right this time.