freelee
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- I know we all have pain for many reasons but do you think there is any hope for the future? I am so sick of living on pain killers. i read here http://paininfo.synthasite.com/pain-research.php about new research but am too tired and in pain so...
- I have started a website and would like your help if you feel so inclined. It is my attempt to learn more about myositis and make sense of this condition. Can you give me any feedback about the site - any criticism or corrections would be really...
- How do you all manage on the computer? If i spend more than 20 minutes i get severe pain in my upper right arm and now also my right shoulder blade. Just curious
- my muscle biopsy is not specific and 2 specialist want to take a "wait and see" approach, in other words wait for symptoms to get worse or show more specific symptoms. They think either Pm or IBM as no skin involvement except itchiness. I feel...
- i get pain in my jaw when i chew. By the night my lower face and sides of face ache. does anyone else get this? my neuro seems to think it is not myositis
- Here I've posted some sites I know about myositis. i like reading other people's stories with this condition. Does anyone know any other personal story sites??These ones can be linked to here :http://myositis.yolasite.com/personal-stories.phpLee's...
- Did it start with pain, weakness, skin problems or something else?I have been given the diagnosis of "inflammatory myopathy" which basically means they don't know which myositis I have. All my symptoms fit PM but just lately noticing a large red...
- SHORT STORY I get this vibrating feeling now when i take tertroxin (I think it is T3.) Does anyone know what it means?LONG STORYI misplaced my Tertroxin in house renovations for a week and noticed i had not as much muscle pain. thought it may just...
- Do you remember what your CPK level was when you were trying to get diagnosed?What level has it come down to now?
- Anyone else have large swollen muscles in upper arms and thighs?
- Does anyone know of any tests that can be used to qualify our symptoms? Sometimes doctors ask 'How is the pain on a scale of 1 - 10?' Is there anything like this for weakness or ability to function e.g turn over in bed, fine motor skills like jar...
- How do you describe your pain? The neurologist rang me yesterday and asked me to describe my pain. She is doing more blood tests to see if I have an overlap syndrome. I said it is a squeezing type pain mainly in thighs and upper arms - but it is...
- After I've been asleep for a while I wake up all stiff in the legs - they are straight and clenched - Any one else get this? Also find it really hard to roll over or change positions. Why ???
- My muscle biopsy was not specific as to what kind of myositis.It said "inflammatory myopathy with MHC pattern seen in dermatomyositis or anti-Jo1 antibody myositis" 2 specialists have said I may never have a specific diagnosis. Is there anyone else...
- Mine have very slowly developed from tight feeling in calves to many other symptoms - last 2 years - stiffness, proximal weakness and muscle pain on use of muscles. Doctors expect me to remember things like when did this symptom start etc which i...