Freelee, I don't have swollen muscles ( I don't think) in my upper arms and thighs but that is exactly where most of my pain is. One reason I can't lift my arms far above my head is because of the pain in my upper arms. Same for getting up out of low chairs and toliet - paion n my thighs.

Have you over-exerted yourself? Done exercise that has put a strain on your muscles? Have you experimented with pain medication to see if you get any relief? Have your doctor suggested anything?

I dont think I have swollen muscles although my calfs often feel REALLY tight like I just ran a marathon. Are you guys' muscles tender to touch. some days mine are better than others but some days it hurts jus to graze my arm with my hand and my theigh muscles hurt if i rub them. I started taking magnesium as prescribed by my dr and that helped alot.

Very painful to massage, very swollen.
It is an ongoing thing over about 3 years - not from exertion. I am on pain medication. No doctors seem interested in swollen muscles as they may think i am overweight. They Mri'd a thigh and could find nothing wrong. They are more concerned with weakness and pain levels - far enough but i am living with the swollen muscles.

athlete14- yes i definitely have days where massage helps & other days when i don't want anyone to touch me because it hurts. just today i was having bad cramps in my right thigh. usually when my husband rubs my legs it helps, but today it just made it hurt so much worse i just couldn't take it. it's weird how it can be like that sometimes.

freelee- i guess if i were a doctor i would be concerned that you were hurting & weak most of all, but i would just keep track of the swollen muscles since that is still an issue too. i guess at this point the doctors are probably just trying to isolate the worst problems for you first, but if you notice than you notice it because you're the one that lives in your body every day & you know what's going on better than anyone else. i wouldn't let it go, but keep track of it & keep mentioning it as you go to your visits because that could be something important for them to know as they try to find the best treatment for you.
hope you're enjoying your art classes. i was just thinking the other day about joining a class about sketching. i just think it would be nice to do something outside of the house & learn a skill that would keep me occupied on the days when i'm on the couch. : )

During the last year, I have seen a few specialists and I have noticed that all of them dismiss minor (to them) ailments. What they do is try to refer you to some other doctor if what ails you is not in the "protocol" for DM/PM. The way I see it is that either they are "ignorant" on what they should do or just don't want to be bothered by details.

My face will swell up at times when it gets inflammed. For the most part, the rest of me gets inflammed when I'm in a flare-up. There may be some slight swelling with the heat/inflammation, but it is mostly just red and hot in the muscle area.

Yes Levek I agree re doctors passing you on.