30k at diagnosis in mid April. 4k as of last week...

400 at dx, never higher than 1000, currently 380

And I was very ill, couldn't walk, short of breath, couldn't swallow...ect

Every one's CK is different, I guess that is what makes some people hard to get a firm dx on.

My CPK was 1500 at diagnosis. It has been as low as 83 when on high doses of Prednisone. I now hang around 235. I get my CPK done monthly as part of my monitoring.

My CPK was 600. I am not exactly sure where it has been but has been in normal range. I also get it checked every 6 weeks with the rest of my labs.

my CPK at diagnosis was around 4000 i think. and now that I'm beginning to go back into remission, it's in the 40s I believe.

CKs were in the 600 range when my doctor sent me to the hospital. At its worst, I was at 9000. After treatment, it was 57 ( 2 months ago). I haven't received the results from the 2 last labworks.

My CPK level was 23,000 when I was diagnosised in 2006. It is usually around 800 now, and the lowest it has been is 600. I have bloodwork done each month. I don't know if I have ever been in remission. I spent a week in hospital and 3 months in bed trying to regain my strength to walk and/or movewhen I was diagnosised. I now work and get around pretty well thanks to the help of LOTS of medication.

7200 for me at diagnosis, 2500 now after 2months of pred

My levels where close to 9000. Now I think it is about 800

Mine was 26,000.... took 5 years to go down. Not out of normal range since (my problems lately are lung related)

My cpk was arnd 1500 when dx ,it is now 589.

My cpk was around 5,000 when diagnosed...my last lab showed i was down to 110.