you know it's really hard for me to keep up with stuff like that too. finally i got one of those little yearly organizers that has a calendar for each month & then notes you can write for each particular day.

i've just started writing a brief description if the days were bad or if i feel something new coming up. make sure to mark the days i have a fever & try to trouble shoot if i was more active that day or not. i just write a smiley face if it was a rather good day. i feel more confident that way because i can go back and retrieve a date or month & see a progression if there is any.

i've noticed that with each flare of dm certain symptoms get a little worse or more pronounced & change a little. it's definitely intimidating so i want to keep track of all that for myself as i move forward with this disease.

Our dear friend Hopeful has great advice ;-)

Since my admission to the hospital, I found it very difficult to remember anything outside of my last name lol
It's incredibly difficult to remember all the different things the drs have to say especially since they speak their own language to us like we're physicians..?

I don't think my symptoms have changed since my Dx, but keeping a journal would definitely help...

Good advice hopeful444! Had i kept a journal/organizer in the pass I could have looked back to see where I may have done something that improved or worsten my condition (DM). Lately I've noticed that my skin breaks out with sores and I am left wondering if it's due to stress or maybe sun exposure (which I try to avoid). Keeping a journal would probably alert me to how I felt or what I did on the days prior to a breakout .

Way to go Hopeful444 - Thanks, I'm heading out to purchase right now!