freelee
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- Anyone else with food intolerances? I am going crazy trying to keep on my restricted diet. I have intolerances to wheat, dairy, MSG, and salicylates. I feel much better if I don't eat these things but it's quite restricting as I can not really eat...
- Hi, I live in Australia and would love to know if there are any other Australians on this board. Hope to hear from you soon
- I am so pleased my CPK is down to 211 and i am feeling so much better - less tiredness and no pain.I have been on the FODMAP diet for gastric inflammation but it has seemed to help my Polymyostis. I know this may only be unique to me, who has always...
- Its difficult to explain any disease to someone who doesnt have it, but its especially challenging to explain what its like to live with a disease that has symptoms that are not always visible on the outside.Family and friends think I look normal...
- I was told many years ago before I had muscle weakness and pains that I was gluten intolerant but not coeliac. I live gluten free.Thought others might be interested in this investigation of 14 adult patients with polymyositis which I have not seen...
- This is a place for people who have fibromyalgia and who blog about it. The site is at http://www.fibrobloggerdirectory.com/
- Does any one else have these? Difficulty turning keys or can openers, difficulty even putting key in lock, difficulty chopping veges, using scissors, burning fingers when cooking?These are all fine motor skills and I did not think Myositis affected...
- You've gotta laugh.Today my husband asked me why I don't do the gardening anymore?The "garden" is down 4 flights of stairs! i have had PM for nearly 10 years and i can barely manage the house work.Luckily I just found it funny. (or maybe I didn't...
- I am having ongoing problems with a multitude of symptoms relating to my stomach, bladder and bowels. I guess they are all affected muscles like my voice fatigue. I am having ongoing tests to try and discover the cause of my nausea, epigastric pain...
- Things I just put up with and nothing can seem to be done for:Trigeminal small-fiber sensory neuropathy which causes burning tongue syndrome or burning mouth syndromeSensorimotor polyneuropathy that causes a decreased ability to move or feel...
- Can you add any useful handy hints here for travelling on a plane when you have myositis? What has helped your symptoms from exacerbating or going into a flare? Thanks. I thought this would be a useful thread.
- I have PM and am not on prednisone.I have continual weekly weight gain with no change in diet of half a kilo or 1.1 lb. I have increased my exercise but still am gaining weight. Does this just happen with PM? All my arm and leg muscles seem swollen...
- I have stomach pains, inabiliity to eat without pain, nausea and abnormal liver blood test results, I am going to the liver doctor but just wondered if it is a complication of PM or Imuran to get liver concerns? Not much comes up when I google.
- I find it really hard to say out my mouth "sorry I cannot do that" and then suffer for days after.I find invisible illness difficult... do you?Do you have any tactics to get others to understand?Even my own family think I am just fat and lazy!It...
- Because I have learnt to pace myself and limit what I do I seem better to other people. My husband (and his friends) think I should go back to work. He wants me to contribute financially. I am in a dilemma because of my skills. If I go back to what...