freelee
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- This is a new symptom for me. I am used to pain and stiffness...now have spasms or cramp like sensations in front of thighs and buttocks. I try stretching my hamstrings - doesn't seem to help. What can be done for buttocks? Do others get this?
- We have a serious lack of facilities and doctors here in Australia for PM DM and IBM. thought we could pool some info.
- what are magnesium infusions, why do you have them and what kind of doctor gives them?
- Thought maybe we could help each other with info e.g. good doctors, support groups that meet, physios, massage therapists or anything that helps. I am recently diagnosed as " Inflammatory myositis" from a muscle biopsy - no rash
- I was diagnosed with fibromyalgia by a rheumatologist, a pain specialist and an endocrinologist. Not one of them touched my body looking for tender points - it was just their solution as they did not know how to deal with my myriad of symptoms. I...
- I've had problems for 10 years, you think i would be use to it now, and I am at my wits end with the pain. Only recently got a diagnosis of "inflammatory Myositis" from a muscle biopsy. This gave me hope - light at the end of the tunnel - Trialled...
- I am a bit confused. The 2 weeks predisone treatment had no effect so my doctor says go of it. CPK and muscle strength not improved. Dr not saying if it is PM or IBM only "inflammatory myositis" from a muscle biopsy. Does anyone else have this...
- Does anyone have IBM or know how it is diagnosed?I was diagnosed recently as "inflammatory myositis" from a muscle biopsy which did not differentiate the type??? Is there a specific test? Is it by symptoms? The prednisone did not work and the doctor...
- What do you do to help yourself with this disease? I thought it would be good if we could pool our resources of positive things that help like :1. pace myself with activity2. acupuncture for feeling a bit better (not cure)3. only wear comfortable...
- It took a muscle biopsy, with a new rheumatologist, but finally after many years of illness I have been diagnosed. The muscle biopsy had inflammatory markers and the doctor said "inflammatory myositis - an autoimmune condition". I presume this means...
- MRI's came back with tears in tendons of both hips, busitis of hips and gluteal tendinopathy and bursitis of shoulders. There goes the walking exercise. I have in past also had plantar fasciitis (a similar condition in foot) does any one know if...
- I can no longer open packets, cutting veges up hurts, i drop things alot. who else has these concerns? (i know they are minor annoyances but they all add up)
- Today i am not thinking straight but want to get some feedback please on how your fibro impacts on your family.also does anyone know where that letter is about being the spouse of the fibro sufferer? Thanx
- Chronic Multisymptom Illness, also known as CMI - only just heard it called this today. the link is at Michigan Health University.http://www.med.umich.edu/1libr/aha/umcmi.htm
- Can you please describe how "calcification in their muscles" feel? Are they the hard lumps under the skin or do they stick out? are they a different colour to your normal skin? thanks