Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

0 Online
  •  I have been seeing a neurologist for about five years. My family practice physician did test for lupus and wants me to see a rheumatologist. I do not want to get too many people stirring the pot so to speak. 
  • lorrieonline

    Ability Aides? Accessories? (Sharing some humor)

    4
    “Mobility Accessories”Yes, I have “accessories;” the dreaded wheelchair and a modest selection of other MS helpers in my bag of tricks.  Sometimes laughter is what the doctor should be ordering to keep us from falling apart, isn't it?  Normally, inside my home, I am able to walk around relatively freely, without the use of one of my reliable accessories. However, if I should get...
  • mlr0853

    side use of medication ms fatigue

    0
    https://en.wikipedia.org/wiki/Modafinil
  • dxat59

    cost of meds iin other countries

    4
    How do we find the cost of meds (Injections) in other countries that have no members on DS? Any suggestions?Gentle hugs, Linda
  • Anne8

    Have you heard about Ocrevus?!

    1
    It seems like they've finally found a treatment for progressive MS!!!!!!!! Anyone looking into it? (I have to wait another 6 months to see if the EU approves it.) http://www.nationalmssociety.org/About-the-Society/News/FDA-Approves-Ocrevus
  • tjquiver

    MS HUG???

    OK...so I was on here not too long ago, asking about Pleurisy, bc, since I've been Dx with it more than once...I was just SURE that is what I have this time...stabbing PAIN/pressure...feels the same! However, since my rheumy NEVER DID get back with me on my x-ray results...I picked up a copy myself...and it said that EVERYTHING was clear...including Pleural cavities! Well, then I "assumed"...
  • Meeno

    Tremors

    2
    I have diagnosed with ms in Dec 2016.Dr said that it is 5 or 6 year old and became very aggressive now.I'm having very bad tremors specially in my head ..its very embarrassing.currently I'm on primidone 150mg but no satisfactory result.can anyone please help me
  • sexysub56

    Has everyone heard that the talk about myelin?

    5
    Isn't it great they are talking myelin repair?  YAY!  YIPPY!  WOO-HOO!
  • sexysub56

    Has anyone else experienced disbielief about MS?

    9
    For some odd reason, I have had several people refuse to believe I have MS, or if I have it that I'm being deceptive about how seriud it is aka "Barb, you don't really need your wheelchair.  Why don't you just walk?"  When I attempted to explain it to her, she refused to listen to me.  HOW CRAZY IS THAT?  IF I COULD I WOULD!
  • bellacindy

    Special needs 19 yrs rrms

    3
    how do I tell if avonex is going to help my special needs daughter. We are about to start.  My daughter has never been able to complain of a simple headache. A moderate intellectual disability and dyspraxia has kept her around 5-7 yrs.  she says no to all docs and shear panic now when someone new is on the scene.i wouldn't allow tabs, although an easy option, the pml scared me. She would never...
  • jennjean7

    MS or anxiety

    3
    Hey all! I need some help! I've been experiencing weird symptoms for 10 plus years now with no diagnosis! I'm sooooo frustrated! I've had optic neuritis, lesions on Brain shown on MRI, negative lumbar puncture, tingling in feet, legs and fingers, pain in legs and arms that feel like growing pains... stretching pains. I can focus, think straight, trouble speaking, articulating, dizzy, bumping into...
  • MSKC

    Anybody take N-acetyl cysteine (NAC)?

    0
    I am on a gluten free diet(and very rarely eat other grains), take Low Dose Naltrexone and a bunch of supplements to manage my MS. I am always looking for information to help myself. I just learned about N-acetyl cysteine(NAC) and how it reduces inflammation and restores your glutathione. It also helps with all kinds of ailments. I also did a search for NAC and MS and found many articles. Here is...
  • jayman2016

    Need advice

    2
    I am basicly a ant standing in between two massive gaints throwing mountains at eachother, and I can't win no matter what. This is the situation. My pain managment and rehab doctor thinks very strongly that I have ms. Based relapsing and remitting numbness, weakness, walking issues, eye problems, muscle tigheness, and the big one which is heat intolanernce. I've had 3 major flares, all happening...
  • leelee

    Am I on the right track?

    5
    First I want to say that I have no diagnosis yet, after 20 plus years still clueless. My New PCP since I moved to Texas was the first physician that said lets do an ANA test. I've done 3 in the past 4 months and they all came back positive. However recently my pattern changed from Speckled to Homogeneous. Well a little about my symptoms: headaches, lower back pain on the right, chest pain on the...
  • Roarrior

    The pain

    6
    I was diagnosed with MS January 2015. Last year I began experiencing facial pain. Last month I was diagnosed with Trigeminal neuralgia.My neurologist prescribed tegratol and baclofen. It's not helping. Does anyone here also suffer with TN and have any suggestions?