Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

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  • djbritt

    Miss everyone!

    Since this change, I have noticed that the regular ones are not showing up. I do not know if they are better, busy, worse, or just do not like this new design. I have not written as often in my journal like I used to but I pop in and read and maybe write an entry. So where is everyone? Are you doing okay?
  • dxat59


    What's going on?  After doing well for so long, now I'm suddenly being bombarded by the hug MonSter!  A week ago, I fell asleep in a chair watching TV.  I suddenly woke up, unable to move.  It felt like my heart was trying to break out of my chest through the breast bone!  Yep, after several years, the hug was back.  Then, last night, I woke up again with a less intense version.  I take 2...
  • lorrieonline

    Exercise More Helpful than "MS Treatments?"

    Sometimes I need a pick-me-up on the "exercise front."  As we all can testify, it's sort of a "damned if you do" and "damned if you don't" situation.  When we over-do-it, we get knocked out for a day (or more) and if we don't do it, we are just knocked out in general.  So, a routine is best, working up as we go.  That's my story and when working out, a stamina develops so long as we keep up...
  • deleted_user

    Student Loan Forgiveness

    I read that depending on the illness that the government will forgive student loans. Has anyone attempted to have their student loans forgiven based on the RX diagnosis.
  • itsasugarrush

    Daughter trying to support father with MS...advice

    Good Evening,My name is Andrea and my father who is in his 60s was diagnosed with MS about 8 years ago. Besides problems with his gait and speech he seems to have a slow progressing form of MS. He is still ambulatory and gets around okay.  He has recently hit a downward spiral of using alcohol to self medicate and  is stating "it helps him with the pain."  I went to see him this evening and...
  • Anne8

    Have you heard about Ocrevus?!

    It seems like they've finally found a treatment for progressive MS!!!!!!!! Anyone looking into it? (I have to wait another 6 months to see if the EU approves it.)
  • PharmDFighter

    DS change?

    Does anyone agree with me that ever since DS changed, it has become worse?  I first joined  DS more than 10 years ago and it seems that it's just gotten worse and worse everytime they changed things around...
  • JackieBlue

    Isolated mountain-top with MS

    Hello, I am new to this group and I am interested in making some new friends, so please let me introduce myself...In 2010, mom passes and then I find hubby is having several facebook affairs. Self destruction ensued, got drunk, lost marital home, sacrificed job. Snapped out of it, decided to get sober, seek therapy and re-educate. In 2012, I started having bizarre health issues. In 2014, I was in...
  • PharmDFighter


    Hey guys:Does anyone have full NEJOM articles on these clinical trials or give me the links on where I can read them? Thanks guys!
  • Xeria

    Cost of LDN

    Hi allFor those taking LDN, can I ask how much you pay for it?  For example 3mg x90?
  • MiselfinMI

    Tecfidera, I'm so itchy!!!

    I started tecfidera three days ago. The first day the Flushing was so bad, my face was so red and scalp and ears felt like they were on fire. I have had more mild Flushing since. However this itchy feeling is driving me crazy. Anyone experience this, and how long did it take for side effects to mellow out? I'm worried about how I'm going to be on the full dose!!
  • lorrieonline

    Diet and Multiple Sclerosis

    Diet and Multiple SclerosisRecently, I've felt at my wit's end concerning this whole MS scenario but when I listen to John McDougall, MD, he makes more and more sense every time I hear his lectures.  His mentor was Roy Swank, MD.  I've just started incorporating this style of eating and am already noticing a change in my system.  I wanted to share this in case anyone else wants to give it a...
  • Anne8

    The joys of incontinence. . .:(

    (Even though it seems noone, or very few, stop by the site nowadays. . .) I've been handling the challenges that MS has been throwing my way, or so I thought, until my most recent bouts of incontinence. I can't seem to get it under control lately. I'm on a relatively expensive drug for it (Mirabegron) which only helps to a point. (I can handle about 2 hours without peeing, but then a sudden...
  • mlr0853

    side use of medication ms fatigue

  • lorrieonline

    Short Written Piece

    The Invisible PainSymptoms of pain unseen,perceived aloofness, uncaringPerhaps, manifested self-perception,inability to keep upUnable to sustain momentum,Pain hides in swallowed prideA lonely existence much of the time,No bandages for invisible wounds.(feeling a bit misunderstood this morning and guessing we all feel that way sometimes so thought I would share)         ...