Multiple Sclerosis (MS) Support Group

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dxat59
dxat59

I get dizzy and nauseaus if I turn my head to the left and my vision rolls.  I have to sleep flat on my back.  I have had this before but I don't remember if I was told it was optioc neuritis.  I have been under a lot of stress lately and that's usually what precedes it.


Gentle hugs,  Linda

lorrieonline
lorrieonline
Oh Linda, that sounds like an awful thing to go through. I know stress can be a horrible thing for us, very harmful. I found a very short video review on O.N. that may be helpful.
https://www.youtube.com/watch?v=m8h-7XUykDM&t=28s&ab_channel=NationalMSSocietyNationalMSSociety
For me, if eve I have a relapse (I'm progressive), I'd opt for IVig, rather than steroids. I guess the first thing is to find out why you're having these symptoms. Have you tried any meditation or tapping? There's a lot out about all that right now.

Hugs,
Lorrie
dxat59
dxat59
My Neuro just tells me I'm anxious about MS if I try to tell him anything. I'm looking for a new one.

Gentle hugs, Linda
lorrieonline
lorrieonline
Oh, that is not good. I just listened to an Aaron Boster, MD informative session on MS and he said that kind of response breaks his heart. Your neuro reminds me of the PCP I had that when I suggested around 2002 that based on all my symptoms, I was wondering if I had MS. He totally disregarded this and said his brother in law had ALS.. "now that's a SERIOUS disease." On the other hand, Dr. Boster gave a wonderful presentation.
https://www.youtube.com/watch?v=_dh189D5zK0&ab_channel=TheMSViewsandNewsLearningChannel
(I'm glad you're getting another neuro.)
mandalalady
mandalalady
Hi. Vertigo when you change your head position sounds familiar. I looked on line and found it to be benign positional vertigo. It can be either an inner ear problem or else caused by MS.

There are a number of web sites, all pretty much the same, that describe how you can 'cure' these (except they might recur) by lying on your back with your head drooping off the end of the bed. Sounds uncomfortable? It is. Then, with help, you move through a series of positions which you hold for two minutes each, or longer. Depends which site you're reading. These have actually been posted by professionals.

Another tip: while the world is spinning crazily, make yourself stare ahead at just one thing...and the vertigo will go away. I tried it and it worked. Good luck, Lorraine.
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