Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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JazzyO 09/07/2011

Hello all,
Well I'm still overshunting. I'm waiting for another test, after my antibiotic course, to see if the infection is clear to get a new shunt valve and tubing.

I'm 5'9" and weighed 160 when my IH came back. Even though my Dr. said he knew I was in my weight range he suggested I should try and lose more weight since it couldn't hurt. I've lost 6 pounds but am stuck! I can't work out since I'm overshunting and can only get up for a little bit at a time. I'm doing free weights and cutting down on my caloric intake,. I'm happy I lost weight but I can't seem to get over that 6 pound weight loss. Any suggestions? Thanks.

JazzyO 09/07/2011

sorry I mean the title to be weight loss blues, lol.

Cath278 09/08/2011

Jazzy, I'm not sure but for your height your weigh sounds ok to me?
Is this a last ditched request from the neuro? When, they cant find anything else to blame, a lot go back to the weight issue. Happened to me, and I was not even over weight! I laughed in to his face.

You poor thing,having those low pressure hds from over shunting. They are terrible. The worst thing I found was how sick to your stomach you would feel. Which, understandably makes exercise a big no no for you.

I would think dieting at the moment would not be a good idea. You need all the back up reserve right now..
The free weights sounds like a good idea but remember, muscle weights twice as much as fat. You could be simple converting to muscle which is great news.

I do hope all this mess clears up quickly for you and you can get the real help you need. What a long road we have to travel at times. Cath

deleted_user 09/08/2011

I hear you - I have been stuck at a weight for a long time and am frustrated. I've read a bit about this online and they say when your stuck at a platue that you should cut your calories by 200. It sounds like you are doing the right tthing to me - but also at some point your body settles at one weight and is happy. But just hearing this I now know its true that doctors will always tell you to lose weight whether your at a healthy one or not.
Mandy

deleted_user 09/08/2011

I've had the most success with 'dieting' by.. NOT dieting. When I hit a wall, I up my calories and forget about losing weight! I don't gorge on junk food or anything, I just eat more healthy calories. More fruit and nuts, more skim milk, peanut butter on whole wheat bread instead of non-fat fake butter. It works for me! Within a week or two I'm starting to lose again and I can cut calories a little.

JazzyO 09/08/2011

Thanks everyone, great suggestions!

I think it is a last ditch effort by my neuro surgeon. He said I might as well try though he didn't think it would really change anything.

I didn't think about my body plateuing (sp?). I have just tried to eat better and not eat anything after dinner. I know when I eat something salty I gain fluid and my weight goes up.
thanks again for all of your help.

deleted_user 09/08/2011

The best thing to do is to stop all processed foods. For example, high fructose corn syrup contributes to weight gain...that book "Skinny B%&*h" really explains it all so succinctly.

I would stay away from GMOs and eat organic, healthy, whole-foods. Try to stay away from dairy if you can...you will be amazed at the results!

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