AusSue
Status: I am really struggling at the moment. I have severe back & neck pain, + ms. Sucks! May need back surgery this year to try to help.
Mood:
Ok
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- Hope to start a discussion here on what Christmas means to each of you & what your traditions are too.I would love some positive input as my faith is lagging & struggling to get into any form of the Christmas spirit. The so called Christian friends...
- Didn't know what to title this & that seemed as good as any.Are others looking forward to Christmas or not & dreading it?I am finding each year that I am getting less & less interested in Christmas parties/get togethers etc. I didn't even go to the...
- Is this group still active? I have got this in foot & waiting to see foot & ankle specialist. Waring moon boot at moment to be able to walk at all. Very painful. 2 toes turned black but not bad now, can't put any toes down on that foot & walk heel...
- This is a follow on from previous post which has gone way back I think so thought would start new one.The Dr's are blaming it all on steroid use so just a warning of troubles that can happen with too much steroid use. I don't mean once a year I mean...
- Well it looks like after my other post about foot pain & everything else I was wrong/right about the foot pain. I didn't know it was part of ms but apparently can be caused by use of steroids & I have had a lot of oral steroids & then have had the 3...
- Is this neuralgia? Last Friday my tongue suddenly felt like it had swollen & was fuzzy & I couldn't talk properly. My nose was numb & I felt & bit shaky/yuck.Friend gave me glucoze tablet to try to help me (she is diabetic) & it did help but it...
- Hi All, I know this sounds weird but wondering if others have had this feeling. I have had it often esp in last couple of week.I feel like I have got a really tight band or something squeezing my head right the way around from forehead around the...
- We are all easily bogged down with all the things ms has robbed us of or does to us. Sometimes we need to look at what it has taught us too.Few things I can think of to kick it off with are -Today I was able to go to the Royal Melbourne show...
- Hi Ladies,I am using the supra-pubic catheter & we were going swimming over the weekend so I used the flip-flow valve on the catheter. This is instead of the bag so I can go swimming etc. I thought that the flip valve was supposed to then be the way...
- Well today I went into Royal melbourne (where I usually go) & saw a different Neurologist there. He was really good. Talked to us (David came with me), explained results of mri. Main thing he was interested in was a bulge in back between T1 & T2 &...
- Thought I would update on how the Botox has gone.Quick recap - Right eye was very painful, almost closed, blurred vision & flickering/blinking constantly after a flare up in May. In a space of 2 weeks I lost the vision basically. After Neurologist...
- Hi all, I have been here before & really appreciate the help & advice you have given me. I have had a lot going on in the last couple of months & today has been a weird day. Sorry in advance for long post but otherwise it would be hard to understand...
- Hi all,I know everyone has different issues too. It is winter here & I have been struggling with a virus that I have had for 4 weeks. Have been coughing, losing speech, can't swallow a lot of the time. Hot/sweaty/cold/chills, hurt everywhere. Just...
- Hi, I have been having the absence seizures - caused by multiple sclerosis apparently as nothing shows on eeg but video did. I have been having the absence seizures since about August last year that we know of (previous to that accused of tuning out...
- Hi, I have been travelling reasonably well with the tegretol & gabapentin both controlling the seizures to a good level. Have been on both for 2 months now. I had a bad ms flare up in May which started with optic neuritis & then affected my left...