unsure81
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- Hi everyone - as some of you know I am new here and have been having fluctuating symptoms for 9 years and despite MG being suspected after the AChR test it was ruled out....twice! I am now on Neuro#2 and finally having further tests and currently...
- I wanted to start another thread so that everyone who was kind enough to give me advice and wish me luck would see it. Thank you all so much for the replies you posted and the hugs you sent I feel very privileged to have found you all and am so...
- Hi everyone.... I feel a bit cheeky posting this as you all are having your own struggles but this time tomorrow I will be travelling 90 miles to see a neuromuscular specislist after 9 years of basically being told there is nothing wrong with me. As...
- Hi everyone - I hope you are all ok? In the Uk we are currently having some lovely Sunny weather which is great (at last!) however, as to be expected with possible MG it does seem to make my eye a bit more droopy and my breathing a bit off which I...
- Sorry to keep posting! I have managed to get hold of my AChR result and I'm confused as I have read that below 0.5, 0.45, 0.3 and 0.2 are classed as negative and even that any reading at all in the blood is abnormal?? I know you have to be guided by...
- Hi everyone - just a quick question...I Promise! In my search for answers I spoke to a Myasthenia Specialist Nurse over the phone to see what her opinion was on my symptoms - she was lovely but said my one sided facial droop is not a typical/classic...
- Firstly I want to say a BIG thank you to everyone who replied to my last post - Samiwells (your post literally made ma laugh out loud!) Annkemp, Elinora, Luvspringers, bweeds, bruceyelverton and Barbel - you are all such a huge comfort and a...
- I am really struggling here - my neuro has decided my one sided facial droop and ptosis is not muscle weakness and just "me". He says he has seen Myasthenia and I don't fit despite my sending him hourly photos to show how both symptoms fluctuate...
- Hi everyone :) I just wondered what test I should push for as my neuro doesn't seem very pro-active and I don't see him offering to do them all!As some of you know, I've been pursuing this for 9years but thankfully had a few years of mild symptoms...
- Hi everyone - I just wondered how you all get/got on with those resistance tests the Neurologists do? My symptoms fluctuate and get worse with activity, my most persistent symptom is my facial droop is always there and will go from a drop on my top...
- I hope this isn't a really silly question....but when should you worry about breathing problems? I am having tests for MG and part of my symptoms include a pressure sensation in the centre of my chest along with a feeling of not being able to fully...
- Hi everyone - I hope you are all ok :) I was just wondering if anyone has had more than one AChR antibody test? I went back to my neurologist for my MRI, Chest X-Ray and blood results - everything was clear but he was annoyed that they had missed my...
- Sorry to keep asking questions but I have another one! I can relate all of my symptoms to MG (fluctuating one sided facial and eyelid droop, weakness and tired/dead/ache of the neck, thighs and occasionally upper arms....and a pressure in the...
- Hi everyoneJust a quick question - today my legs have started to go like they did 9 years ago. They feel weak with a dead ache feeling as if I've run a marathon! I find myself walking like a duck with a slight limp and using my hands/arms for...
- Hi, I am looking for some help/advice from any Myasthenia Gravis Sufferers - I'll try to keep this as brief as I can! I am 32 but 9 years ago I started with one sided facial weakness thought to be bells palsy initially but that was dismissed as it...