unsure81
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- Hi everyone.....I hope you are all ok :) I am struggling to be honest and frustrated and confused....and just don't know what to do,i'm starting to wonder if this is the illness progressing or if I am just overdoing things and getting anxious about...
- Hi everyone - I hope your weekend is going ok :)Just a quick question - how would you describe your weakness?? I have an obvious facial droop (one sided) that does not move automatically when I speak as it should - however, if I consciously try to...
- Hi everyone and Happy New Year!! As you know -I've been struggling a little and looking into ways to help myself. I've come across people online saying how gluten free or anti inflammatory diets have really helped their MG and how these play a big...
- Hi everyone...and firstly Merry Christmas!! I hope you have all been well and managed some form of celebration :) As I posted a couple if weeks ago, I took my daughters to Disney at the beginning of December which wiped me out and caused my mestinon...
- Hi everyone - I am looking for information on whether thymoma has been found in double seronegative patients?? It seems common in those with positive ACHR and but seems rare in the MUSK patients....does anyone know about the double seronegative...
- Hi everyone! I hope you are all ok, sorry, I know I've been quiet lately, I have been doing quite well on Mestinon and had found a pretty good balance....okay, I wasn't back to pre-MG but I was doing pretty okay and managing to take my girls to see...
- Hi everyone - sorry to post 2 questions so close together but if you read my previous question you'll see why I am asking this too!I have been really lucky - whenever my MG flares I have always noticed that I don't seem to get colds etc! I have been...
- I just wondered when MG started for you all and what path it took in terms of whether it just hit you with severity from the start or how long the symptoms took to build if it started mild??For me, I am at the mild end of the disease with mild...
- Hi everyone -I just wanted to put something on here to see what others think, if anyone has tried this and maybe in case this may help anyone else, especially with ME, Fibromyalgia or Chronic Fatigue alongside their MG.My brother has been on at me...
- Thank you all for you replies to my post and the hugs you sent - they all helped so much and I made it through yesterday's MRI and Review.....and hopefully won't have another test or Dr's Appointment for quite a while now....which is probably the...
- I should be used to tests and Doctors by now...I did 18months of it 9 years ago searching for answers and am well into my 9th month now and yet I dread each time almost more than the last!! As some if you know I was left with anxiety issues after...
- Sorry to overlap questions as I see Megan is new to Mestinon too ang having some similar questions to me but I just wondered if anyone can give me (and maybe Megan if she is having similar issues) any advice with this??I have just started Mestinon...
- Hi everyone - sorry to pester and be annoying but does anyone know how long the MuSK antibody blood test takes?? I had the blood taken 18 days ago and they aren't back yet - I've read they can take longer than the AChR test but can't seem to find a...
- Hi everyone - can anyone help with this or relate to it?I have been on 30mg of Mestinon 4 times a day for 7 days now - the doses takes around 40mins to kick in (I take with food) and after an initially wooziness (which seems to be settling now as I...
- Hi everyone - sorry if this question has already been asked a million times but I've tried searching old posts and had a look on the links group but I'm still not sure? I just wondered how quickly Mestinon worked for you? I know it must depend on...