When I have it, it is almost always one sided. ( may be always one sided and not always the same side ). b.

Mine is always one-sided.
Almost everyone's facial droop here - is primarily one-sided.
The Nurse may be lovely, but how could she make such a drastically wrong statement?
You might want to consider a different care provider.
- Ross

I think most of us started with one side worse than the other and often with eye problems--drooping lid, double vision or focus problems

Before MG I had Bell's Palsy twice--one side of the face drooping/numb. At first with MG I thought that was happening--left eyelid wouldn't open all the way and problems chewing and double vision.

Those of us with MG have been amazed at the ignorance of some medical folks who tell us things like the person you talked to.

A test that can be done at home: put an ice pack on your eyes for a minute or two and see if that makes things better or normal. That hints at MG, although not definite.
Good Luck

"she was lovely but said my one sided facial droop is not a typical/classic presentation of MG she said its unusual to only have one side affected?"

Wow, that is what my neuro said too. But also was the one that first diagnosed me with a stroke. From what I read, it almost always manifests itself on one side (at least first). From the replies on this topic, it appears that way too.

Droop is more pronounced on one side for me.

By the end of the day, or if very tired otherwise, I get ptosis of left eye only.

l sometimes wonder where these so called experts get their information?.My experience was/is that my left side is always the first to show symptoms.Face,eye left leg,arm etc.Which also at face value looks like a stroke.

It also highlights the need to find someone who is more open minded to what the reality of life with MG is, we are much more than a square in a round hole,in my case l was an octagon so many sides,no one knew which side to smooth off first.

Prior to diagnosis clinicians may see a worst case scenario at presentation. For me I had facial droop on both sides, both eyes, and complete inability to hold my head up. Since treatment though, I typically have facial droop, and body droop, on one side only, it's any bodies guess which side but usually the left.

I invite medical staff to poke around DS whenever they respond with "that's not MG".

Take care.
Larissa

One side is worse for me too. My left side is the saggy side and that eye is the one that turns in when I get tired.

I think it depends on your face or bone structure. I have beedy suken eyes and high cheek bones. I notice the droop and so does my wife but others do not. I have never seen or heard of it being on more than one side or even more than left.