unsure81
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- Hi everyone....I'm sorry I don't get on here much these days - I do check in from time to time and can't believe how many new faces there are!I need some advice - and I know you are all very experienced and will give me honest advice. For those who...
- Hi everyone....I know I haven't posted for a while, I've been trying to make the best of life and not dwell on things...if that makes sense!!For those who don't know me or don't remember, I am seronegative for both AChR and MuSK and EMG and SFEMG...
- Hi everyoneI hope you're all doing ok :) As most of you know, I started steroids a month ago and (Thank the Lord!) I have had a much more stable month!! Mestinon is working so much better and I am finally able to build up some of the stamina I have...
- Hi everyone - as you may have seen on my previous post, my GP has decided to give me a months trial of prednisolone on top of my 4-5 x 60mg Mestinon a day.He has put me on a 25mg dose....which I know is lower than usual as most seem to go on around...
- Hi everyone, I am looking for some help and advice...and apologise in advance if I am asking silly questions or questions EVERYONE asks!!I have been struggling for 10 years with one sided facial droop and heavy/weak limbs/muscles....and severe...
- Hi everyoneI hope you are all doing ok...I haven't been on for a few months and it seems like so much has changed...new members...and the shocking news about Elinor...I still can't believe it and feel awful I haven't been here.I decided to take a...
- Hi everyone - I am 10days into the waiting game and feel like I'm going to go mad right now!I have spent years trying to get a diagnosis...I finally got a clinical diagnosis for myasthenia but found it's pretty useless without test to back it up!!...
- Hi everyone - I hope that you are ok? Can anyone help me with this, as you know I am struggling a little and the Mestinon Magic wore off after 3-4 short months for me! the 90mg dose seemed to make me worse and the 60mg isn't enough but I tried to...
- Hi everyone - I hope you are all doing ok....sorry to go on a rant here as I know you are all dealing with the same and even worse than I am...but do you ever just feel trapped in this big mess?!I went to my GP, he shared my Frustration with my...
- Hi everyone!I have just come across some information about Lymes Disease and it seems that the symptoms can be very similar to a lot of other conditions including MG....what stuck out for me was the facial weakness, difficulty walking, fatigue, pale...
- Hi everyone - I hope you don't mind me posting on here...I have jumped across from the Myasthenia Gravis Group as I am desperately trying to find some answers! Can any of you tell me if you can relate to any of my symptoms/story...or can give me...
- Hi everyone - I am sorry to pester and I know I have probably asked similar questions along my way but I am just trying to piece everything together and work out my next move and could really do with your help/thoughts/advice!I have had a reasonably...
- Hi everyone - I hope you are all well :) just a quick question which I'm not sure is MG related....or just a result of my worn out body!!! But, since my last flare up my voice now becomes weak during long conversations - which I know some of you...
- ....and as I suspected the SFEMG was negative! I finally received the results by letter yesterday.However, whilst my Neuro is not prepared to trial steroids without any evidence to support the diagnosis.....(which I do understand)...he is still...
- Hi everyoneI just want to say a big thank you to everyone who messaged and sent me their wishes, I am sorry that I have been so quiet - "head in the sand" is pretty much the only way I know how to deal with things and waiting for the SFEMG has been...