unsure81
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- Hi everyone :) I hope you're all ok? Thanks for the hugs and messages, I know I have been a little quiet recently - I just feel very disheartened after my Neuro saying he was convinced of my diagnosis regardless of the results of my SFEMG which is...
- Hi everyone - I just wanted to say a huge thank you for all of your replies and thoughts/research on my other post :)After seeing all of your comments and reading Beth's Inspirational Letter.....and everyone's stories week after week it makes me so...
- Hi everyone, I hope you're all well and had a lovely weekend :) Thank you so much for the hugs and comments on my last post....I have had a couple of days to mull it over and I am feeling a (little!) more positive. I have decided (If I can find my...
- Hi everyone - sorry to just whinge on but I am so confused ...and upset right now!!As you know I am seronegative with unremarkable EMG, I initially responded really well to Mestinon until I took a trip to Disney with my children in December. I...
- Hi everyone, I hope you're all well :) I am a little better now I have dropped my mestinon back to 60mg doses but still intermittent having chest heaviness/pressure on standing making breathing an effort! My energy levels are beyond zero, the...
- Hi everyone, I hope you are all doing ok? As you all know I've had a rollercoaster week....and with that comes the mental battle, and for me, old habits really do die hard!! When I saw my first Neuro about 10 years ago when this started I was...
- Hi everyone - I know I've asked variations of this question before but I am really struggling now and I'm not even sure if it's something that is even to do with MG - can any of you help me with this even if its just to say No, it's not really an MG...
- Hi everyone - I hope you are all well - thanks again for all of your replies on my steroids question - as you probably gathered I am trying to get my head around this!! I think I naively thought that mestinon would be enough - I spent so long...
- Hi everyone - I hope you are all having a good weekend :)I have increased my mestinon taking it to 90mg 4 x per day (from 60mg on my morning dose and then 90mg on my next 2 doses and then another 60mg for my last dose of the day) - I have been on...
- Hi everyone- I just want to say a huge thank you for the replies and hugs from my "am I being too sensitive" post....and I wanted to update you all. I phoned my GP yesterday morning and she said this was way over her head and I needed to be referred...
- Me again - sorry for bombarding you all with questions but I have just read something on another forum which has made me curious about what you all think!Since I started with this 9 years ago I have had this problem to one degree or another - it was...
- Hi everyone - I just wanted to pick your brains to see if you think I am being a little too sensitive here!! As you all know I only have a clinical diagnosis of MG through response to mestinon and being seronegative with unremarkable EMG makes me...
- Hi everyone - just a quick question, I know there are links with hormones and increases in MG symptoms (when pre-menstrual etc) but has anyone got any thoughts/experiences/information on contraception effects? I had the hormonal coil implanted about...
- Hi everyone - I hope you all had a good weekend :)As some of you know I've been having a few scary breathing issues, mainly at night - so my GP ordered basic Spirometry/Lung Function Tests as a starting point, which I had today.The nurse who did...
- Hi everyone - I know this may be a silly question, and I've heard it talked about here on various posts BUT, just to clarify......I think I'm correct in saying that Mestinon is generally believed to have no effect on a person without MG but taking...