Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi everyone - I hope you are all ok? In the Uk we are currently having some lovely Sunny weather which is great (at last!) however, as to be expected with possible MG it does seem to make my eye a bit more droopy and my breathing a bit off which I assume is responsible for the blueness feet and hands at times...lovely! haha.
I am very lucky and have never had any issues with swallowing, chewing etc - just the facial droop but over the past few days, especially at night I have the feeling like my throat is closing at the the back and I need to swallow hard - does anyone else experience this? I haven't struggled with food or drink at all just this feeling there is something at the back of my throat or that it is closing and I can almost feel the air pass through as I breathe??? Does this make any sense at all?!?
Thanks everyone :)
I am very lucky and have never had any issues with swallowing, chewing etc - just the facial droop but over the past few days, especially at night I have the feeling like my throat is closing at the the back and I need to swallow hard - does anyone else experience this? I haven't struggled with food or drink at all just this feeling there is something at the back of my throat or that it is closing and I can almost feel the air pass through as I breathe??? Does this make any sense at all?!?
Thanks everyone :)
Research at the Mayo Clinic determined that in an MG breathing crisis most of the time a CPAP or BIPAP kept folks from having to be on a respirator.
I used mestinon as a prelude to meals as it helped me swallow. Several months of high dose prednisone made these problems go away for me.
I "think" the tightening of my throat nowaday's is related to the MG. I know that mucus can build up in the nasal area because the muscles are weak and can't expel it normally. This makes me fell like it is constricted.
Lindsay, about ten years ago I had two incidents when I woke up and couldn't breathe. I ran around the house until my throat opened.
I got a CPAP with C-flex. It relieves some of the pressure on ex-hales, but a BiPAP may be better. They will likely want to conduct a sleep study to determine if you have apnea. Mention your MG.