unsure81
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- After reading a previous comment on a post on here about the symptoms Doctors do not accept as being part of MG and the symptoms you all experience - It got me wondering what symptoms you all have that you feel is caused by MG that the Doctors don't...
- Sorry! Me again!!After the SFEMG on Monday I have been having funny tight/pulling sensations running along the top left side of my head. Yesterday I just shrugged it off as my ponytail/hair somehow pulling etc but today every time I touch the...
- Hi everyone - I hope you're all ok and had a good weekendI just wanted to update you and ask you for any words of wisdom/advice/thoughts as I have really mixed feelings about my appointment today??I arrived for my 8am (!!) appointment after a 2 hour...
- Well...its another day, another question for me!! Sorry!!Does anyone know have experience of peak flow readings?? I went to the Dr today as the tender pain in my chest is bad and the pressure sensation on my chest! Last month when they diagnosed me...
- Hi everyone - just a quick question, (sorry to keep posting!)....I just wondered if any of you know of, or have experience of, pain with Thymoma??I have been told I have Costochondritis (inflammation of the chest wall) which is causing me a very...
- Hi everyone - I have been wanting to ask this for a while, but even now I am at a loss as to how to accurately describe it all (!) but I am finally going to try! So brace yourselves because if you didn't think I was crazy after my singing...
- Hi everyone - I just wanted to drop in quickly to say hello and I hope you are all well....and hopefully to give you all a little laugh! I am hoping to get to sit and catch up on some of your journals and posts once the girls go back to school this...
- Hi everyone. I hope you are all well :)I finally got a date for my Nerve Muscle test today and it got me wondering have any of you had the RNS test?? My Neuro seemed to want to do the RNS test first and talked me through the decrement pattern they...
- I posted this earlier but it seems to have gone from the discussion board?Hi everyone - I'm struggling a bit with my symptoms while I wait for nerve/muscle tests.....and I'm scared - from what I've read here, if I do have MG, it seems it must be on...
- Hi everyone - I'm struggling a bit with my symptoms while I wait for nerve/muscle tests.....and I'm scared - from what I've read here, if I do have MG, it seems it must be on the milder side and I'm worried it won't show up on the tests as I have...
- Hi everyone - I hope you are all doing ok.I just wondered what you would define the signs of a muscle as?My facial droop is the most persistent and consistent symptom along with a droopy eye - all of my other symptoms fluctuate and vary much more. I...
- Hi everyone - I just wanted to share the observation I have made since joining this group and reading everyone's posts. I have said before how sad it makes me to read the struggles some of you have had with just being taken seriously- let alone...
- Hi everyone - I hope your MG is behaving itself and you are all doing ok.I wanted to ask those of you that are having success with your medication and are able to "control" the majority (or hopefully all) of your symptoms if it helped to alleviate...
- Hi everyone-I hope you are all having a good day :) I just wondered how you all deal with the waiting for tests/diagnosis?I had decided to just forget about everything while I wait the 2-3 months for my first muscle/nerve tests and try to just enjoy...
- Hi everyone - I hope you are all doing ok today :) I have another question for you all - I'm sorry for my continual curiosity! As I said on my previous post I have found all of your stories of your struggles for diagnosis, treatment and the scrutuny...