Rbear66

Activity

• Neuropathy
  

  Fire feet

  Posted by: Rbear66

  Last Reply: Sandi2947 12/03/2018

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  Impossible to describe to someone who doesn't have them but my feet burn/freeze/tingle and are numb all at once. Drives me nuts! I have found something that helps. Typically I don't tolerate vibration well but my fire feet LOVE....I mean LOVE the vibrating slippers that are sold in retail stores. I bought a pair for my hubby as he has Lymphoma and lymphedema in his left leg and is supposed to keep his feet up...blah blah blah. Well it seems that the mild vibration is enough of a distraction...

• Dystonia
  

  Hi, Im new

  Posted by: Rbear66

  Last Reply: Juls 11/26/2016

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  I was just diagnosed with dystonia, they didnt say what kind but it seems to effect my neck and jaw mostly although I have spasms everywhere. I have trouble swallowing and I break out in a pouring down sweat whenever it feels like it and my legs are useless , I walk like Im 90 sometimes cause my legs are locked up. Can anyone give me some clues on what to do from here or is it gonna get worse or better? Im a little scared. Thank you in advance!

• 

  I am safe here...shhh

  Posted by: Rbear66

  Posted: 07/12/2016

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  I can't talk about this anywhere else. My new Doctor suspected brain damage as the cause for my memory and cognition problems, so he did  SPECT scan. It showed decreased blood flow and earned me two new diagnoses. Bilateral orbital frontal hypoperfusion and Autoimmune Cerebritis. from what has been explained, so far, to me, there are four ways these happen. 1. Seizure. I have had an EEG recently nd I don't have them. 2. Brain infection. I don't have one now and I would have had to get over it...

• Chronic Pain
  

  Discussion Comment

  Posted by: Rbear66

  Posted: 07/03/2016

  Rbear66 commented on the discussion wich is worse.

• Multiple Sclerosis (MS)
  

  Discussion Comment

  Posted by: Rbear66

  Posted: 07/03/2016

  Rbear66 commented on the discussion I hate the new site.

• Multiple Sclerosis (MS)
  

  Discussion Comment

  Posted by: Rbear66

  Posted: 07/03/2016

  Rbear66 commented on the discussion I hate the new site.

• Multiple Sclerosis (MS)
  

  Discussion Comment

  Posted by: Rbear66

  Posted: 07/03/2016

  Rbear66 commented on the discussion I hate the new site.

• Multiple Sclerosis (MS)
  

  Discussion Like

  Posted by: Rbear66

  Posted: 07/03/2016

  Rbear66 liked the discussion I hate the new site.